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. Author manuscript; available in PMC: 2019 Oct 11.
Published in final edited form as: Am J Ophthalmol. 2018 Mar 28;191:xvi–xxiv. doi: 10.1016/j.ajo.2018.03.028

Table 2.

Summary of Potential Psychosocial Challenges Experienced by Parents of Children with Chronic Anterior Uveitis.

A. Medical Challenges.
 1. Increased time demands to attend medical appointments and provide care for children during school absences.
 2. Increased financial burden, to cover medical co-payments and treatments not covered by insurance.
 3. Negotiation of relative responsibility with child for medical management.
B. Vocational and Avocational Challenges.
 1. Reduction of or withdrawal from career or other pursuits.
 2. Financial consequences of reduction in employment.
C. Interpersonal Relationships.
 1. Increased attention to child may detract time and energy from other relationships.
 2. Negotiation of shared management of child’s treatment with partner.
 3. Dealing with a child’s concern about becoming a burden to family and friends.
 4. Potential for strengthened relationships through shared adversity.
 5. Prolonged parenting commitments due to a child’s delayed achievement of autonomy.
D. Psychological Well-being.
 1. Uncertainty about offspring’s current disease status, success of medical regimens, trajectory of disease.
 2. The need to help children cope with negative emotions related to disease-associated challenges can be emotionally taxing.
 3. Treatment demands may overwhelm parental psychological resources and deplete time for self-care.
 4. Potential for strengthening psychological resources through adversity.