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. 2019 Aug 20;31(6):689–696. doi: 10.1097/BOR.0000000000000646

Table 1.

The National Lupus Registries supported by the Centers for Disease Control and Prevention in the United States

Registry (partner) Public health authority Surveillance area or health system Population at risk Type of lupus Main racial/Ethnic group Surveillance period
GLR (Emory University) [1,6] GA Department of Public Health Fulton and DeKalb Counties, GA 1552 970 SLE, CCLE White and Black 2002–2004
MILES (UM) [2,7] MI Department of Community Health Wayne and Washtenaw Counties, MI ∼2400 000 SLE White and Black, Arab and Chaldean Americans 2002–2004
MLSP (NYU) [4] NY City Department of Health New York County, NY (Borough of Manhattan) 1585 873 SLE White, Asian/Pacific Islander, Hispanic, Black 2007–2009
CLSP (UCSF) [5] CA Department of Public Health San Francisco County, CA 790 582 SLE White, Asian/Pacific Islander, Hispanic, Black 2007–2009
IHS Lupus Registry (ANTHC) [3,8] Indian Health Service IHS Data Warehouse of Alaska, Phoenix & Oklahoma City Areas 211,916 SLE, MCTD American Indian/ Alaska Native 2007–2009

ANTHC, Alaska Native Tribal Health Consortium; CA, California; CCLE, chronic cutaneous lupus erythematosus; CLSP, California Lupus Surveillance Project; GA, Georgia; GLR, Georgia Lupus Registry; IHS, Indian Health Service; MCTD, mixed connective tissue disease; MI, Michigan; MILES, Michigan Lupus Epidemiology & Surveillance Program; MLSP, Manhattan Lupus Surveillance Project; NY, New York; NYU, New York University; SLE, systemic lupus erythematosus; UCSF, University of California, San Francisco; UM, University of Michigan.