Table 1.

Completion of initial survey

Demographic questions	Number	Completed (%)
Consent to participate (yes)	456	100%
Age (range)	452	99%
Respondent’s role in trials	450	99%
Where respondent lives	452	99%
Specific open-ended feedback questions
Based on your experience, what questions or comments do you have (if any) about why people stay involved in a trial?	454	99%
Based on your experience, what questions or comments do you have (if any) about the planning of study data collection?	415	91%
Based on your experience, what questions or comments do you have (if any) about how trials collect follow-up data from participants?	397	87%
Based on your experience, what questions or comments do you have (if any) about the information people are given about follow-up data collection procedures for a trial?	376	82%
Based on your experience, what questions or comments do you have (if any) about trial staff who are involved in collecting follow-up data from trial participants?	343	75%
Do you have any other questions or comments about how people are encouraged to stay involved in trials?	261	57%