Table 5.

Parent daily diary items.

Activity Engagement/Acceptance

I encouraged my child to do things that were fun or important to them regardless of their pain.

I encouraged my child to do the things they had to do regardless of their pain.

Protective Parent Behavior

I allowed my child to skip activities due to their pain.

I let my child sleep more than usual due to their pain.

Family Impact

I spent more time than usual with my child due to their pain.

Plans were changed due to my child's pain.

Distress

I felt I couldn't help my child when they were in pain.

I found it difficult to tolerate my child's suffering.

My child's pain was overwhelming to me.

Stress

Please make note of anything exciting or stressful that happened today.

On a scale of 0 (no distress) to 10 (severe distress), tell us how much distress you are feeling right now.