. 2019 Oct 23;18:86. doi: 10.1186/s12904-019-0474-x

Table 2.

Outcome measures, data collection methods and time points by participant group

Participants	Time points	Methods	Variables/measures
Residents	Baseline	Review of residents’ files	Demographic and clinical data of residents, including: Age, sex, time living in RACF, chronic comorbidities, dementia diagnosis and type of dementia; current level of care and function, ACP or GOC plan in place, hospitalisations/infections/falls in previous 3 months
	6 and 12-months follow-up	Review of residents’ files	Hospital transfers and primary reason for transfer; Death and place of death; GOC plan in place; GOC plan adhered to
RACF staff	Baseline, after training period and 6-months follow-up	Validated survey qPAD	Knowledge and attitudes about palliative and EOL care for people with dementia

Participants

Time points

Methods

Variables/measures

Residents

Baseline

Review of residents’ files

Demographic and clinical data of residents, including:

Age, sex, time living in RACF, chronic comorbidities, dementia diagnosis and type of dementia; current level of care and function, ACP or GOC plan in place, hospitalisations/infections/falls in previous 3 months

6 and 12-months follow-up

Review of residents’ files

Hospital transfers and primary reason for transfer;

Death and place of death;

GOC plan in place; GOC plan adhered to

RACF staff

Baseline, after training period and 6-months follow-up

Validated survey qPAD

Knowledge and attitudes about palliative and EOL care for people with dementia

Abbreviations: ACP advance care plans, EOL end-of-life, GOC goals of care, qPAD questionnaire palliative care for advanced dementia, RACF residential aged care facility