Table 1.

JMFN surveys and data on patients with PIDs over time [41–44]

Number of	2011	2013	2015	2018
Countries covered	64	78	84	86
Physicians in JMFN	490	556	602	792
Centres in JMFN	254	234	253	358
Surveys returned	192	225	225a	252a
Followed patients	79 764	138 847	157 454	187 988
Diagnosed patients	60 364	77 193	83 743	94 024
Treated patients (IVIG)b	14 140	17 225	20 427	23 967
CVID	7613	8582	10 545	11 996
oPIDsc	12 073	15 439	16 749	18 805

CVID, common variable immune deficiency; JMFN, Jeffrey Modell Foundation Network; IVIG, intravenous immunoglobulin; oPID, other PIDs; PID, primary immune deficiency.

^aNumber of returned surveys in 2015 and 2018 estimated based on description.

^bTreatment includes delivery of IVIG therapy and any other appropriate clinical services, note that treatment does not effectively stop existing excretion.

^coPID defects for which known long-term poliovirus excreters exist(ed), estimated as 20% of all diagnosed patients.