Table 4.

Participant survey assessments

Domain	Questionnaire	# Items	Item responses	Reliability	Validity
Stress	Perceived Stress Scale95	10	5-point scale (0=never to 4=very often).	0.84-0.86	Concurrent, predictive, construct
Burden	Heart Failure Caregiver Questionnaire96	21	5-point scale (0=not at all to 4=extremely).	0.78-0.85	Concurrent, Construct
Coping	Ways of Coping Questionnaire, short form.97	35	4-point Likert scale (0 = does not apply and/or not used, 1 = used some what, 2 = used quite a bit, and 3 = used a great deal).	0.76-0.84	Construct
Self-care	Health Self-Care Neglect (HSCN) scale28 Self-Care Inventory(SCI) derived from the Self-Care of Chronic Illness Inventory.98	10 30	HSCN is dichotomous SCI has 4 scales measuring self-care maintenance (8 items), monitoring (5 items), and management (7 items) as well as a self-care self-efficacy scale (10 items). Each scale score is standardized 0-100 points with higher scores indicating better self-care.	0.76 0.67-0.86	Content Content, Construct
Health status	Medical Outcomes Study Short form (SF)-36.99	36	Varied (3-, 5- and 6-pt scale and dichotomous [yes/no]); each component score is standardized 0-100 point scale.	>0.80	Convergent, Divergent
Quality of the relationship	Mutuality Scale100,101	15	5-point Likert scale (“not at all” (0) to “a great deal” (4)). Total scale score is computed by averaging all item scores with higher scores indicating higher mutuality.	0.76-0.88	Construct
Perceptions of time and the future	Future time perspective	10	7-point Likert-type scale (1= very untrue, to 7 = very true)	0.85	Discriminant
Work performance	7-day work performance questionnaire.102	13	Interview format. Varied (10-point scale and dichotomous [yes/no] and number hours spent performing paid and unpaid work	0.73	Predictive Concurrent Construct