Table 2.
Health State | N=5 | ||
---|---|---|---|
EQ-5D | PedsQoL NMM | ||
Mean (SD) | Domain | Mean (SD) | |
Baseline | 0.04 (0.10) | About | 43.8 (7.3) |
Communication | 56.7 (16.0) | ||
Family | 44.0 (8.0) | ||
Worsened | −0.13 (0.06) | ||
Mild improvement | 0.04 (0.11) | ||
Moderate improvement | 0.10 (0.09) | ||
Stands/walks with assistance* | 0.39 (0.29) | ||
Stands/walks unaided* | 0.72 (0.12) | ||
Loss of ambulation with/without assistance* | −0.12 (0.16) |
Note: *Denotes health states where two index scores were calculated for one of the participants.