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. Author manuscript; available in PMC: 2021 Jan 1.
Published in final edited form as: Behav Sleep Med. 2019 Apr 29;18(1):23–34. doi: 10.1080/15402002.2018.1518230

Table 5:

Self-reported Barriers to Research Participation and Strategies Used to Retain Participants with Drop-out Potential

Self-reported participant
barriers
Number of
participants
with this barrier
% Participants
with this
barrier
Strategies used to
combat this
barrier
Teen Sleep Study
Emotional burden 1 0.01 3
Time constraints 6 0.03 1, 2, 4, 6
Found treatment unhelpful 4 0.02 3, 6
Unknown 16 9.09 n/a
Community Sleep Study
Homelessness and/or housing instability 4 3.33 2, 3, 4, 5, 6
Family illness 3 2.48 3, 5, 6
Physical health issue (e.g. surgery, chronic pain, cancer) 9 7.44 1, 2, 3, 4, 6
Mental health issue (e.g. psychiatric hospitalization, decompensation, relapse, paranoia, avolition, etc.) 22 18.18 2, 3, 4, 5, 6
Transportation 12 9.92 1, 2
Scheduling conflicts (e.g. with work, school, family, children) 15 12.40 1, 2, 4, 6
Difficulty with treatment (e.g. unwilling to change, disliked it, too much work) 10 8.26 3, 4, 6
Lack of interest after placement in UC-DT 4 3.31 3, 4, 5, 6
Moved away 6 4.96 1, 2, 4, 5, 6
Passed away 3 2.48 n/a
Unknown 2 1.65 n/a

Note. Participants were considered potential drop-outs if they appreciably delayed treatment or assessment, paused treatment for an extended time, fell out of touch with our team for a period, or expressed desire at any point to drop out of the study