Table I.
Participant Demographics and Adolescent Patient Demographics
| NCH participants | CCHMC participants | Total participants | Patientsb at NCH | Patientsb at CCHMC | |
|---|---|---|---|---|---|
| Adolescent Patients on hydroxyurea (n) | 18 | 11 | 29 | 34 | 33 |
| Median age, in years (range) | 14 (12–18) | 16 (13–17) | 14 (12–18) | 14 (12–18) | 16 (12–18) |
| Female (n) | 11 | 7 | 18 | 17 | 17 |
| SCD genotype (n) | |||||
| SS or Sβ0 | 17 | 9 | 26 | 31 | 29 |
| Other (e.g., SC, Sβ+) | 1 | 2 | 3 | 3 | 4 |
| Race | |||||
| Black/African American | 13 | 11 | 24 | – | – |
| African | 4 | 0 | 4 | ||
| Black/African American and African | 1 | 0 | 1 | ||
| Caregivers (n) | 18 | 11 | 29 | – | – |
| Median age, in years (range) | 40 (34–68) | 40 (33–55)a | 40 (33–68)a | – | – |
| Relationship to adolescent | |||||
| Mother | 12 | 7 | 19 | – | – |
| Father | 5 | 4 | 9 | ||
| Grandmother | 1 | 0 | 1 | ||
| Education level (n) | |||||
| <12th grade | 3 | 1 | 4 | ||
| High school diploma or General Education Diploma | 4 | 1 | 5 | ||
| Some college, no degree | 4 | 3 | 7 | – | – |
| Associates degree | 2 | 0 | 2 | ||
| Bachelor’s degree | 3 | 3 | 6 | ||
| Graduate or professional degree | 2 | 3 | 5 |
a
Two caregivers did not report their age.
b
Prescribed hydroxyurea and were 12–18 years of age at the beginning of enrollment.