Table 1.
Data collected at baseline and during the follow-up
| Patient-related characteristics | Baseline examination | Follow-up after 3 months | Follow-up after 6 months | Follow-up after 12 months | Follow-up after 24, 36, 48, 60 months |
| Age | X | ||||
| Sex | X | ||||
| Place of residence | X | X | X | X | X |
| Nationality | X | ||||
| Marital status | X | ||||
| Education | X | ||||
| Occupation | X | X | X | X | X |
| Smoking | X | X | X | X | X |
| Alcolhol consumption | X | x | x | x | x |
| Female health (pregnancy, childbirth…) | X | x | x | x | x |
| (Prior) diseases | X | X | X | X | X |
| Prior treatments | X | ||||
| Family history of PE | X | ||||
| Symptoms of PE | X | ||||
| Start of PE symptoms | X | ||||
| (Prior) medication | X | X | X | X | X |
| Vital signs at hospital admission | X | ||||
| Physical activity | X | X | X | X | X |
| Treatment-related variables | X | ||||
| Date and time starting treatment prior admission | X | ||||
| Diagnostic procedures | X | ||||
| Date and time of diagnosis | X | ||||
| In-hospital treatment | X | ||||
| In-hospital complications | X | ||||
| Medication | X | ||||
| Treatment (eg, thrombolysis) | x | ||||
| Laboratory values | X | ||||
| General parameters | |||||
| Date and time of hospital admission | X | ||||
| Date hospital discharge | X | ||||
| Outcome parameters | |||||
| Health-related quality of life | X | X | X | X | |
| Mental health | X | X | X | X | |
| Healthcare utilisation | X | X | X | X | |
| Medication | X | X | X | X | |
| Treatment (eg, CPAP) | X | X | X | X | |
| Relapse | X | X | X | X | |
| Bleeding complications | X | X | X | X | |
| Chronic thromboembolic pulmonary hypertension | X | X | X | X | |
| Dietary intake | X | X | X | X |
CPAP, continuous positive airway pressure.