Table 2.
Types of problem experienced when accessing LPF or PS in PKU.
| Type of problem | Number of responses | % of responses | Number of child problems | % of responses | Number of adult problems | % of responses |
|---|---|---|---|---|---|---|
| I have a delivery service – but the system doesn't work | 93 | 40 | 77 | 51 | 16 | 19 |
| The GP restricts the quantity of products I can get | 53 | 23 | 22 | 15 | 31 | 37 |
| I have a prescription, but I cannot get the products I want from the chemist. | 50 | 21 | 25 | 17 | 25 | 30 |
| The GPs receptionists/administrative staff are unhelpful or obstructive | 49 | 21 | 26 | 17 | 23 | 28 |
| The GP will not prescribe the products I need | 39 | 17 | 15 | 10 | 24 | 29 |
| I have prescription foods delivered which are out of date, or wrong, or damaged or poor quality | 33 | 14 | 22 | 15 | 11 | 13 |
| The NHS authority (e.g. the CCG/Health Board) for my area is refusing or restricting prescribing for PKU products | 30 | 13 | 9 | 17 | 17 | 21 |
| The NHS authority for my area has made a policy that creates an obstacle for getting my prescriptions | 12 | 5 | 5 | 3 | 7 | 8 |
| The GP refuses to allow repeat prescriptions | 10 | 4 | 5 | 3 | 5 | 6 |
| My dietitian or consultant will not prescribe the products I need. | 5 | 2 | 2 | 1 | 3 | 4 |
| Other | 31 | 13 | 18 | 12 | 13 | 16 |
| Total responses | 405 | 100 | 230 | 101 | 175 | 100 |
| Total number of choices | 234 | 151 | 83 |