Table 1.

Respondent characteristics

Carer age range	Number of carers
18‐29	4
30‐39	12
40‐49	17
50‐59	6
60‐69	3
	Total: 42

Care recipient relationship	Number of care recipients
Parent	2
Grandparent	1
Son/daughter	31
Sibling	2
Partner/spouse	5
Non‐family member, for example service user	2
	Total: 43a

Care recipient age range	Number of care recipients
≤10	20
11‐18	11
19‐29	4
30‐39	2
40‐49	0
50‐59	2
60‐69	1
≥70	3
	Total: 43a

Reasons for enteral feeding tube placement	Number of care recipients (%)
Failure to thrive	7 (16)
Swallowing difficulties due to disability, stroke, brain injury	18 (42)
Issues to digestive system (eg Crohn's disease, gastroparesis)	18 (42)
	Total: 43a

^aOne respondent is taking care of 2 family members.