Table 2.
Summary of characteristics of included studies (n = 94)
| Characteristic | N=, [references] | |
|---|---|---|
| Type of reasons | Reasons for participation | 21 3, 24, 25, 27, 33, 35, 38, 49, 57, 59, 60, 64, 70, 73, 74, 79, 80, 81, 82, 90, 120 |
| Reasons against participation | 19 92, 93, 94, 95, 96, 97, 98, 99, 100, 101, 102, 103, 104, 105, 106, 107, 108, 109, 111 | |
| Both | 54 1, 19, 20, 21, 22, 23, 28, 29, 30, 31, 32, 34, 36, 37, 39, 40, 42, 43, 44, 45, 46, 47, 48, 50, 51, 52, 53, 54, 55, 56, 58, 61, 62, 63, 65, 66, 67, 68, 69, 71, 72, 75, 76, 77, 78, 84, 85, 86, 87, 88, 89, 91 | |
| Study nature | Hypothetical study | 64 3, 20, 21, 22, 23, 24, 25, 28, 29, 30, 31, 32, 34, 35, 36, 37, 39, 40, 41, 42, 43, 44, 45, 46, 47, 48, 49, 50, 51, 52, 53, 54, 55, 56, 58, 59, 61, 62, 63, 65, 66, 67, 69, 70, 71, 72, 75, 77, 80, 81, 86, 87, 88, 90, 91, 93, 94, 95, 96, 97, 98, 101, 106, 111 |
| ‘Real’/embedded study | ||
| Prospective | 21 1, 19, 27, 38, 57, 64, 68, 73, 76, 78, 83, 85, 89, 92, 99, 100, 103, 104, 107, 109, 120 | |
| Retrospective | 9 33, 60, 74, 79, 82, 84, 102, 105, 108 | |
| Study methods | Quantitative | |
| Qualitative | 44 3, 19, 20, 22, 23, 24, 28, 29, 33, 34, 38, 39, 42, 43, 44, 48, 49, 57, 61, 64, 66, 71, 72, 73, 75, 79, 81, 83, 84, 86, 87, 89, 90, 95, 97, 99, 100, 108, 111, 120 | |
| Mixed methods | 50 1, 21, 25, 27, 30, 31, 32, 35, 36, 37, 45, 46, 47, 50, 51, 52, 53, 54, 55, 56, 58, 59, 60, 62, 65, 67, 68, 69, 70, 74, 76, 77, 80, 85, 88, 91, 93, 94, 96, 98, 101, 102, 103, 105, 106, 109 | |
| Types of studies reasons were assessed for | Clinical trials | 5 19, 30, 74, 78, 120 |
| Non‐therapeutic trials | 1 27 | |
| Bio‐banks | 1 91 | |
| Dental research | 1 20 | |
| (Medical) research in general | 7 1, 3, 21, 58, 61, 79, 111 | |
| Genomics Research | 1 66 | |
| Disease/disorder focus | Infectious diseases | |
| HIV | 40 22, 23, 25, 28, 31, 32, 33, 34, 36, 37, 38, 40, 42, 43, 44, 45, 46, 47, 48, 49, 50, 51, 52, 53, 54, 56, 57, 59, 62, 65, 67, 68, 69, 70, 71, 75, 82, 83, 85, 86, 88, 89, 92, 93, 94, 95, 98, 101, 106, 107, 108 | |
| Malaria | 6 60, 80, 83, 84, 87, 99 | |
| Tuberculosis | 2 39, 97 | |
| Sexually transmitted infections | 3 41, 53, 57 | |
| Typhoid fever | 1 76 | |
| RSV | 1 84 | |
| Non‐infectious diseases | ||
| Cancer | 6 29, 77, 90, 102, 104, 109 | |
| Stroke | 1 100 | |
| Dementia | 1 24 | |
| Haemophilia | 1 35 | |
| Childhood obesity | 1 103 | |
| Pre‐eclampsia | 2 63, 105 | |
| Rheumatoid arthritis | 2 55, 74 | |
| Mental health | 1 72 | |
| Cardiovascular Disease | 3 64, 73 | |
| Regions | Sub‐Saharan Africa | 45 3, 19, 25, 28, 31, 33, 35, 37, 38, 39, 40, 42, 44, 49, 50, 57, 60, 62, 63, 67, 69, 70, 72, 75, 79, 80, 82, 83, 84, 85, 86, 87, 88, 89, 90, 92, 93, 94, 95, 96, 97, 99, 101, 106, 107, 108, 111, 120 |
| Middle East and North Africa | 4 1, 20, 61, 91 | |
| Latin America and the Caribbean | 11 29, 45, 56, 64, 68, 74, 78, 93, 100, 103, 109 | |
| Asia | 27 21, 22, 23, 24, 27, 30, 32, 36, 41, 43, 46, 47, 48, 51, 52, 53, 54, 58, 59, 65, 66, 71, 76, 77, 81, 98, 102, 104, 105 | |
| Eastern Europe | 2 55, 73 | |