Table 3.
Advantages and disadvantages of late and early detection of A-T according to parents (n = 652 respondents).
| Late detection A-T | Early detection A-T | ||
|---|---|---|---|
| Advantages | Disadvantages | Advantages | Disadvantages |
| Carefree period (57.1%) | Heredity (chance of another child with A-T) (46.2%) | Start with supportive treatment (49.2%) | No worry-free period (48.9%) |
| Parents who stated they saw no advantages in late detection of A-T (26.1%) | Delayed start of treatment/surveillance (42.6%) | Clarity, knowing what to expect (35.6%) | Unable to enjoy the maternity period (47%) |
| No medical labeling of child (11.2%) | Long period of uncertainty (30.8%) | Surveillance by specialists (37.7%) | The baby has no symptoms yet (23.2%) |
| Being able to fully enjoy the maternity period (10.3%) | Long period of worries (21.5%) | Early breast cancer screening mother (27.2%) | Devastating news in a mentally emotional period (15.1%) |
| Being able to make a carefree choice to have another child (8.5%) | Delayed breast cancer screening mother (18.4%) | Being able to prepare (mentally/practically) for a sick child (26.3%) | Insecurity about the future (14.3%) |
| No time to prepare (mentally/practically)/ make adjustments in your life (12.8%) | Being able to make informed reproductive choices (13.1%) | Difficulty to process information directly after birth (8.7%) | |