Table 4.
Level of agreement with regard to advantages of early detection of A-T.
| Survey question: | Level of agreementa (%) | Rating mean (SD) | ||||
|---|---|---|---|---|---|---|
|
Fully
disagree |
Fully
agree |
|||||
| Early detection of A-T ensures that a child with A-T can immediately receive optimal guidance when the first symptoms occur | 1.7 | 1.6 | 0.8 | 34.3 | 61.6 | 4.5 (0.75) |
| Early detection of A-T prevents a long period between the first symptoms and the eventual diagnosis | 1.9 | 3.7 | 7.9 | 47.0 | 39.4 | 4.2 (0.87) |
| Early detection of A-T provides parents with the opportunity to make informed choices about family planning | 2.8 | 3.3 | 5.8 | 43.1 | 45.0 | 4.2 (0.91) |
| Early detection of A-T prevents a long period of uncertainty for parents | 3.1 | 5.3 | 6.9 | 40.1 | 44.2 | 4.2 (0.99) |
| Early detection enables parents to make early adjustments into their lives (for example wheelchair accessible house) | 2.0 | 6.2 | 13.1 | 49.9 | 28.1 | 4.0 (0.92) |
| It is an advantage that parents are informed about the slightly increased risk of developing breast cancer for the mother | 2.5 | 5.0 | 12.3 | 45.2 | 34.2 | 4.0 (0.95) |
| Early detection of A-T ensures that parents can adjust their expectations about the condition of their child | 2.3 | 7.3 | 10.0 | 50.9 | 29.0 | 4.0 (0.95) |
| Early detection of A-T prevents unnecessary additional tests | 1.9 | 7.8 | 14.2 | 51.5 | 24.3 | 3.9 (0.93) |
| Early detection of A-T prevents multiple visits to the hospital | 2.8 | 15.6 | 20.3 | 42.5 | 20.3 | 3.6 (1.05) |
| Early detection of A-T saves extra health costs | 6.1 | 17.9 | 26.4 | 36.3 | 12.6 | 3.3 (1.10) |
| Early detection of A-T ensures that parent can take better care of their child | 10.0 | 17.2 | 25.6 | 27.6 | 19.0 | 3.3 (1.24) |
SD, Standard deviation. aFive-point rating scale: 1, fully disagree; 5, fully agree; n = 659 respondents. Missing values are excluded from the percentages.