Table 5.
Level of agreement with regard to disadvantages of early detection of A-T.
| Survey question: | Level of agreementa (%) | Ratings mean (SD) | ||||
|---|---|---|---|---|---|---|
|
Fully
disagree |
Fully
agree |
|||||
| Early detection of A-T overburdens parents with information about an untreatable disease during the maternity period | 7.3 | 19.7 | 13.4 | 42.4 | 16.4 | 3.4 (1.19) |
| Early detection of A-T deprives parents of the opportunity to enjoy a seemingly healthy baby in the first months/years of life | 5.5 | 20.7 | 18.3 | 38.4 | 16.5 | 3.4 (1.15) |
| Early detection of AT makes parents worry about the disease before the symptoms even occur | 9.0 | 27.9 | 15.8 | 38.4 | 8.1 | 3.0 (1.16) |
| Every child has the right to an open future | 11.1 | 24.3 | 31.2 | 21.5 | 10.6 | 3.0 (1.16) |
| Early detection of A-T overburdens parents with information about the increased risk of breast cancer for the mother during the maternity period | 10.6 | 33.5 | 15.6 | 30.0 | 9.4 | 2.9 (1.20) |
| Early detection of A-T adds little to the quality of life of a child with A-T | 12.6 | 44.9 | 20.0 | 17.2 | 4.7 | 2.6 (1.06) |
| The disease A-T cannot be prevented or treated anyway | 19.8 | 37.8 | 18.1 | 18.4 | 4.7 | 2.5 (1.14) |
| You have to take life as it comes | 19.8 | 31.5 | 28.2 | 14.5 | 5.0 | 2.5 (1.06) |
| Early detection of A-T can lead to a reduced bond between parents and child | 38.7 | 29.5 | 15.4 | 11.5 | 4.5 | 2.1 (1.18) |
SD, Standard deviation. aFive-point rating scale: 1, fully disagree; 5, fully agree; n = 659 respondents. Missing values are excluded from the percentages.