Table 6.
Comparison to the perspective of parents of A-T patients: opinions on current policy and NBS for A-T.
| Survey question: |
Parents of A-T patients
Degree of supporta n (%) Total n = 35b |
Parents of healthy newborns
Degree of supporta n (%) Total n = 659 |
p-valuec | ||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|
| In the case of an abnormal SCID screening result that turns out not be SCID after follow-up diagnostics, diagnostics for A-T should not be applied. Additional diagnostics for A-T should only be used if symptoms of A-T begin to occur. | Fully disagree | Fully agree | Fully disagree | Fully agree | 0.403 | ||||||
| 12 (37.5) | 12 (37.5) | 3 (8.8) | 6 (17.4) | 1 (2.9) | 150 (22.9) | 328 (50.0) | 61 (9.3) | 90 (13.7) | 27 (4.1) | ||
| Missing 1 | Missing 3 | ||||||||||
| If a technique was available that would be able to detect all children with A-T with NBS, A-T should be included in the NBS program. | No | Yes | No | Yes | 0.003 | ||||||
| 8 (24%) | 25 (76%) | 49 (8.6%) | 523 (91.4%) | ||||||||
| Missing 2 | Missing 10d | ||||||||||
SD, Standard deviation.
a
Five-point rating scale: 1, fully disagree; 5, fully agree; Missing values are excluded from the percentages.
b
Data collected via the questionnaire sent to parents of A-T patients (17).
c
χ2 test.
d
n = 77 answered “don't know” and were excluded from analysis.