Table 3 –

The Thirteen Themes Behind Unwillingness to Share

Theme	Total	% of those unwilling to share
Risks with identifiable information	155	26.70%
Potential harm	116	20.00%
Risks with privacy	116	20.00%
Unauthorized access to or sharing of information	53	9.10%
Lack of knowledge of research study	49	8.40%
Improper/unauthorized use of information	33	5.70%
Compromised confidentiality	32	5.50%
Uncomfortable sharing medical data/records	29	5.00%
Beliefs on information sharing	28	4.80%
Specific health information	26	4.50%
Medical data handling	23	4.00%
Distrust in government	13	2.20%
Insufficient compensation/no benefit to participant	8	1.40%