Table 1.

Patient Delirium Burden (DEL-B-P) and Family Caregiver Burden Delirium (DEL-B-C) Instrument Elements

Patient items (DEL-B-P)
• Unsure of where they were
• Could not remember parts of the hospital stay
• Saw or heard things that were not really there
• Nightmares or vivid dreams that were intense or bothersome
• Suddenly felt confused
• Thought that they would not get better
• Afraid of losing their mind
• Restricted from getting out of a bed or a chair with alarms or restraints
Family caregiver items (DEL-B-C)
• Loved one did not recognize caregiver
• Loved one experienced changes in memory and thinking
• Loved one saw or heard things that were not really there
• Loved one became irritable or angry
• Feelings of helplessness as a caregiver
• Concern about increased responsibilities as a caregiver
• Concern that loved one would never be back to his/her usual self
• Loved one demonstrated unsafe behaviours

Note: The instruments are copyright pending and will be made freely and publicly available at https://www.hospitalelderlifeprogram.org/delirium-instruments/.