Table 1.
Reasons for item exclusions from the 47-item ACP Engagement Survey- Surrogate Decision Maker version (post-survey administration)
| Item | Question | Reason For Exclusion |
|---|---|---|
| 1 | How well informed are you about who can be a medical decision maker? | Not Excluded |
| 2 | How well informed are you about what makes someone a good medical decision maker? | Not Excluded |
| 3 | How well informed are you about the types of decisions that you may have to make for your loved one in the future? | Not Excluded |
| 4 | How much have you thought about your role as your loved one’s medical decision-maker? | Not Excluded |
| 5 | How much have you thought about being part of a discussion with your loved one’s DOCTORS about your role as a medical decision-maker for your loved one? | Lacked Face Validity; doublebarreled question |
| 6 | How much have you thought about being part of a discussion with your loved one’s OTHER family and friends about your role as your loved one’s medical decision-maker? | Lacked Face Validity |
| 7 | As of today, how confident are you that you could serve as your loved one’s medical decision maker? | Not Excluded |
| 8 | As of today, how confident are you that you could be part of a discussion with your loved one’s DOCTORS about your role as your loved one’s medical decision maker? | Redundant with other items, lacked face validity |
| 9 | As of today, how confident are you that you could be part of a discussion with your loved one’s OTHER FAMILY and FRIENDS about your role as your loved one’s medical decision maker? | Redundant with other items, lacked face validity |
| 10 | How ready are you to formally discuss with your loved one your role as their medical decision maker? | Not Excluded |
| 11 | How ready are you to be part of a discussion with your loved one’s DOCTOR about your role as your loved one’s medical decision-maker? | Lacked Face Validity |
| 12 | How ready are you to be part of a discussion with your loved one’s OTHER FAMILY and FRIENDS about your role as your loved one’s medical decision maker? | Redundant with other items, lacked face validity |
| 13 | How ready are you to be named a medical decision maker in OFFICIAL PAPERS that are signed by your loved one? | Lacked Face Validity |
| 14 | How much have you thought about talking with your loved one about whether or not there are certain health situations that would make your loved one’s life not worth living? | Not Excluded |
| 15 | How much have you thought about being part of a discussion with your loved one’s DOCTORS about whether or not there are certain health situations that would make your loved one’s life not worth living? | Not Excluded |
| 16 | How much have you thought about being part of a discussion with your loved ones OTHER FAMILY and FRIENDS about whether or not there are certain health situations that would make your loved one’s life not worth living? | Redundant with other items |
| 17 | As of today, how confident are you that you could talk with your loved one about whether or not certain health situations would their life not worth living? | Redundant with other items |
| 18 | As of today, how confident are you that you could be part of a discussion with your loved one’s DOCTORS about whether or not there are certain health situations that would make your loved one’s life not worth living? | Redundant with other items |
| 19 | As of today, how confident are you that you could talk with your loved one’s OTHER FAMILY and FRIENDS about whether or not there are certain health situations that would make your loved one’s life not worth living? | Redundant with other items items |
| 20 | How ready are you to talk with your loved one about whether or not there are certain health situations that would make their life not worth living? | Not Excluded |
| 21 | How ready are you to be part of a discussion with your loved one’s DOCTOR about whether or not there are certain health situations that would make your loved one’s life not worth living? | Not Excluded |
| 22 | How ready are you to be part of a discussion with your loved one’s OTHER FAMILY and FRIENDS about whether or not there are certain health situations that would make your loved one’s life not worth living? | Redundant with other items |
| 23 | How ready are you help your loved one SIGN OFFICIAL PAPERS putting his/her wishes in writing about whether or not there are certain health situations that would make your loved one’s life not worth living? | Lacked Face Validity |
| 24 | How much have you thought about talking with your loved one about the care he/she would want if they were very sick or near the end of life? | Not Excluded |
| 25 | How much have you thought about being part of a discussion with your loved one’s DOCTORS about the care your loved one would want if he/she was very sick or near the end of life? | Not Excluded |
| 26 | How much have you thought about being part of a discussion with your loved one’s OTHER FAMILY and FRIENDS about the care your loved one would want if he/she were very sick or near the end of life? | Redundant with other items |
| 27 | As of today, how confident are you that you could talk with your loved one about the care he/she would want if he/she were very sick or near the end of life? | Not Excluded |
| 28 | As of today, how confident are you that you could be part of a discussion with your loved one’s doctors about the care your loved one would want if he/she were very sick or near the end of life? | Not Excluded |
| 29 | As of today, how confident are you that you could be part of a discussion with your loved one’s OTHER FAMILY and FRIENDS about the care your loved one would want if he/she were very sick or near the end of life? | Redundant with other items |
| 30 | How ready are you to talk to your loved one about the kind of medical care he/she would want if they were very sick or near the end of life? | Not Excluded |
| 31 | How ready are you to be part of a discussion with your loved one’s DOCTOR about the kind of medical care your loved one would want if he/she were very sick or near the end of life? | Not Excluded |
| 32 | How ready are you to be part of a discussion with your loved one’s OTHER FAMILY and FRIENDS about the kind of medical care he/she would want if he/she were very sick or near the end of life? | Redundant with other items |
| 33 | How ready are you to help your loved one SIGN OFFICIAL PAPERS putting his/her wishes in writing about the kind of medical care he/she would want if he/she very sick or near the end of life? | Redundant with other items; lacked Face Validity |
| 34 | How well informed are you about the different amounts of flexibility a person can give their medical decision maker? | Lacked Face Validity |
| 35 | How much have you thought about the amount of flexibility you would have as your loved one’s medical decision maker? | Redundant with other items; lacked Face Validity |
| 36 | How much have you thought about talking with your loved one about the amount of flexibility he/she would want to give you as a medical decision maker? | Lacked Face Validity |
| 37 | How much have you thought about being part of a discussion with your loved one’s DOCTOR about the amount of flexibility you would have as the medical decision maker? | Redundant with other items; lacked Face Validity |
| 38 | How much have you thought about being part of a discussion with your loved one’s OTHER family and friends about the amount of flexibility you would have as the medical decision maker? | Lacked Face Validity |
| 39 | As of today, how confident are you that you could talk with your loved one about how much flexibility he/she would want to give you as a medical decision maker? | Lacked Face Validity |
| 40 | As of today, how confident are you that you could be part of a discussion with your loved one’s DOCTOR about how much flexibility your loved one would want to give you as a medical decision maker? | Lacked Face Validity |
| 41 | As of today, how confident are you that you could be part of a discussion with your loved one’s OTHER family and friends about how much flexibility your loved one would want to give you as a medical decision maker? | Lacked Face Validity |
| 42 | How ready are you to talk to your loved one about how much flexibility he/she would want to give you as a medical decision maker? | Lacked Face Validity |
| 43 | How ready are you to be part of a discussion with your loved one’s DOCTOR about how much flexibility your loved one would want to give you as a medical decision maker? | Redundant with other items; lacked Face Validity |
| 44 | How ready are you to be part of a discussion with your loved one’s OTHER FAMILY and FRIENDS about how much flexibility your loved one would want to give you as a medical decision maker? | Redundant with other items; lacked Face Validity |
| 45 | How ready are you to help your loved one SIGN OFFICIAL PAPERS about how much flexibility he/she would want to give you as a medical decision maker? | Redundant with other items; lacked Face Validity |
| 46 | How confident are you that today you could ask the right questions of your loved one’s doctors to help make good medical decisions for your loved one if your loved one was unable to speak for themselves? | Deleted due to typo in question stem |
| 47 | How ready are you to ask your loved one’s doctor questions to help you make a good medical decision for your loved one if your loved one was unable to speak for themselves? | Not Excluded |