Table 1.
Construct | Instrument | Reference | Parent Q’aire | Patient Q’aire |
In-clinic Q’aire |
Age range* |
Demographics and history | ||||||
Demographics | Introducing you | T20 PT, 27 28 |
√ | √ | Parent report: all ages—no age restrictions while patient at RCHGS† Patient report: all ages—no age restrictions |
|
Medical history | Medical and developmental history | T20 PT | √ | √ | Parent report: all ages—no age restrictions while patient at RCHGS† Patient report: 18+ |
|
Gender | ||||||
Gender identity and supports | About your gender—gender slider | T20 PT | √ | All ages—no age restrictions | ||
Social transitioning | About socially transitioning | T20 PT | √ | √ | Parent report: 0–7 Patient report: 8+ |
|
Voice | About your voice | 32 33 | √ | 12+ | ||
Gender role behaviours and gender identity | Gender Identity Questionnaire | 29 | √ | <=12 | ||
Gender dysphoria | Single item measuring recent gender-related distress | T20 PT | √ | All ages—no age restrictions | ||
Gender dysphoria: gender preoccupation and gender stability | Gender Preoccupation and Stability Questionnaire | 30 | √ | 11+ | ||
Body image | Body Image Scale | 31 | √ | √ | 12+ | |
Chest dysphoria | Chest Dysphoria Scale | 15 | √ | 12+ (birth-assigned females) | ||
Hormone treatment experiences‡ | Medical intervention treatment effects and satisfaction. Tanner’s Sexual Maturation Scale | T20 PT, 71–73 |
√ | 12+ for those reporting that they have started puberty suppression or gender affirming hormones | ||
Mental health | ||||||
Internalising and externalising behaviour | Youth Self Report | 34 | √ | 11–18 | ||
Preschool Child Behavior Checklist | 35 | √ | 1.5–5 | |||
School-age Child Behavior Checklist | 34 | √ | 6–18 | |||
Anxiety symptomatology | Spence Children's Anxiety Scale—Preschool | 37 | √ | 3–5 | ||
Spence Children's Anxiety Scale—Parent report | 38 | √ | 6–18 | |||
Spence Children's Anxiety Scale—Self report | 39–41 | √ | 7–18 | |||
Eating disorders | Branched Eating disorder Test | 48 | √ | 12+ | ||
Depressive symptomatology | Short Mood and Feelings Questionnaire | 36 | √ | √ | Parent report: all ages—no age restrictions while patient at RCHGS†. Patient report: 7+ |
|
Depression, anxiety and stress | DASS21 | 42 | √ | 18+ | ||
Social phobia | Social Phobia Scale | 43 | √ | 18+ | ||
Resilience: pride and connectedness | The Gender Minority Stress and Resilience Measure | 44 | √ | 12+ | ||
Resilience | The Brief Resilience Scale | 45 | √ | 8+ | ||
Self-harm | Self-harm questions based on Hawton et al (2002) | 46 | √ | √ | 12+ | |
Suicidality | Columbia-Suicide Severity Rating Scale | 47 | √ | √ | 12+ | |
Autism features§ | Social Responsiveness Scale 2: School-age form |
50 | √ | 4–18 | ||
School functioning | ||||||
School attendance | About school (school type, attendance) | 52 | √ | √ | Parent report: all ages—no age restrictions while patient at RCHGS† Patient report: 18+ |
|
Academic performance | School-age Child Behavior Checklist | 34 | √ | 6–18 | ||
School connectedness | Psychological Sense of School Membership Survey | 51 | √ | 12–18 | ||
Bullying and discrimination | ||||||
Bullying | Gatehouse Bullying Scale | 53 | √ | 8–18 | ||
Discrimination | Adapted from the Victorian Population Health Survey | 54 | √ | 18+ | ||
Family functioning | ||||||
Family functioning | Family Assessment Device—General Functioning scale | 61 62 | √ | √ | Parent report: all ages—no age restrictions while patient at RCHGS† Patient report: 12+ |
|
Quality of life | ||||||
Quality of life (patient) | Child Health Utility 9D | 55 56 | √ | √ | Parent report: ≤5 Patient report: 6+ |
|
AQoL-4D | 57 58 | √ | 18+ | |||
Parental quality of life | AQoL-4D | 57 58 | √ | All ages—no age restrictions while patient at RCHGS† | ||
Drug use and sexual health | ||||||
Health risk behaviours | Tobacco, alcohol and drug use | 63–66 | √ | √ | 12+ | |
Sexuality | Attraction and relationship questions. Adapted from the Victorian Population Health Survey | T20 PT, 54 |
√ | √ | 12+ | |
Clinical experiences | ||||||
Discharge status‡ | Reasons for discharging from RCHGS | T20 PT | √ | √ | For those discharged from RCHGS Parent report: ≤11 Patient report: 12+ |
|
Experiences of care‡ | RCHGS experiences of care | 67–70 | √ | √ | Parent report: all ages—no age restrictions while patient at RCHGS† Patient report: 12+ |
*Age range refers to the age of TGD youth at which questionnaires are asked of either the TGD youth and/or their parent.
†Not administered to parent if young person is aged 18 years (or older) and discharged from RCHGS.
‡Only asked at follow-up assessments.
§Only asked at initial assessment.
AQoL, The Assessment of Quality of Life; DASS21, Depression Anxiety Stress Scales-21; Q’aire, Questionnaire; TGD, transgender and gender diverse; T20 PT, Trans20 project team devised questions.