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. 2019 Nov 4;9(11):e032151. doi: 10.1136/bmjopen-2019-032151

Table 1.

Measures used in Trans20 in parent, patient and in-clinic questionnaires

Construct Instrument Reference Parent Q’aire Patient
Q’aire
In-clinic
Q’aire
Age range*
Demographics and history
 Demographics Introducing you T20 PT,
27 28
Parent report: all ages—no age restrictions while patient at RCHGS†
Patient report: all ages—no age restrictions
 Medical history Medical and developmental history T20 PT Parent report: all ages—no age restrictions while patient at RCHGS†
Patient report: 18+
Gender
 Gender identity and supports About your gender—gender slider T20 PT All ages—no age restrictions
 Social transitioning About socially transitioning T20 PT Parent report: 0–7
Patient report: 8+
 Voice About your voice 32 33 12+
 Gender role behaviours and gender identity Gender Identity Questionnaire 29 <=12
 Gender dysphoria Single item measuring recent gender-related distress T20 PT All ages—no age restrictions
 Gender dysphoria: gender preoccupation and gender stability Gender Preoccupation and Stability Questionnaire 30 11+
 Body image Body Image Scale 31 12+
 Chest dysphoria Chest Dysphoria Scale 15 12+ (birth-assigned females)
 Hormone treatment experiences‡ Medical intervention treatment effects and satisfaction. Tanner’s Sexual Maturation Scale T20 PT,
71–73
12+ for those reporting that they have started puberty suppression or gender affirming hormones
Mental health
 Internalising and externalising behaviour Youth Self Report 34 11–18
Preschool Child Behavior Checklist 35 1.5–5
School-age Child Behavior Checklist 34 6–18
 Anxiety symptomatology Spence Children's Anxiety Scale—Preschool 37 3–5
Spence Children's Anxiety Scale—Parent report 38 6–18
Spence Children's Anxiety Scale—Self report 39–41 7–18
 Eating disorders Branched Eating disorder Test 48 12+
 Depressive symptomatology Short Mood and Feelings Questionnaire 36 Parent report: all ages—no age restrictions while patient at RCHGS†.
Patient report: 7+
 Depression, anxiety and stress DASS21 42 18+
 Social phobia Social Phobia Scale 43 18+
 Resilience: pride and connectedness The Gender Minority Stress and Resilience Measure 44 12+
 Resilience The Brief Resilience Scale 45 8+
 Self-harm Self-harm questions based on Hawton et al (2002) 46 12+
 Suicidality Columbia-Suicide Severity Rating Scale 47 12+
 Autism features§ Social Responsiveness Scale
2: School-age form
50 4–18
School functioning
 School attendance About school (school type, attendance) 52 Parent report: all ages—no age restrictions while patient at RCHGS†
Patient report: 18+
 Academic performance School-age Child Behavior Checklist 34 6–18
 School connectedness Psychological Sense of School Membership Survey 51 12–18
Bullying and discrimination
 Bullying Gatehouse Bullying Scale 53 8–18
 Discrimination Adapted from the Victorian Population Health Survey 54 18+
Family functioning
 Family functioning Family Assessment Device—General Functioning scale 61 62 Parent report: all ages—no age restrictions while patient at RCHGS†
Patient report: 12+
Quality of life
 Quality of life (patient) Child Health Utility 9D 55 56 Parent report: ≤5
Patient report: 6+
AQoL-4D 57 58 18+
 Parental quality of life AQoL-4D 57 58 All ages—no age restrictions while patient at RCHGS†
Drug use and sexual health
 Health risk behaviours Tobacco, alcohol and drug use 63–66 12+
 Sexuality Attraction and relationship questions. Adapted from the Victorian Population Health Survey T20 PT,
54
12+
Clinical experiences
 Discharge status‡ Reasons for discharging from RCHGS T20 PT For those discharged from RCHGS
Parent report: ≤11
Patient report: 12+
 Experiences of care‡ RCHGS experiences of care 67–70 Parent report: all ages—no age restrictions while patient at RCHGS†
Patient report: 12+

*Age range refers to the age of TGD youth at which questionnaires are asked of either the TGD youth and/or their parent.

†Not administered to parent if young person is aged 18 years (or older) and discharged from RCHGS.

‡Only asked at follow-up assessments.

§Only asked at initial assessment.

AQoL, The Assessment of Quality of Life; DASS21, Depression Anxiety Stress Scales-21; Q’aire, Questionnaire; TGD, transgender and gender diverse; T20 PT, Trans20 project team devised questions.