Table 3.
Summary of responses to the Patient Education Materials Assessment Tool for Audiovisual Materials (PEMAT) interviews
| PEMAT item | Summary of responses |
| Are you currently a leader of a support group, a co-leader or planning on becoming a support group leader? | 4 co-leaders, 5 leaders, 1 plan to become leader |
| PROCESS | |
| Did you find that the weekly frequency of the training sessions was adequate? | 10 yes |
| Did you find the length of each training session appropriate? | 10 yes; 3 added that grief module was not long enough, 1 said grief module was too long |
| Was it difficult to find the motivation to attend the training session every week? | 9 no; 1 sometimes due to scheduling |
| PURPOSE | |
| Did you understand the objectives of the SPIN-SSLED training programme modules? | 10 yes |
| Did you find the information provided in the SPIN-SSLED training programme relevant? | 10 yes |
| WORDS AND LANGUAGE | |
| Did you find that the content of the programme manual was clear, concise and easy to follow? | 10 yes |
| Did you find that the content delivered in the training sessions and the discussion about the content was easy to understand and useful? | 10 yes |
| CONTENT AND ORGANISATION | |
| Did you find that the content of the SPIN-SSLED modules was presented logically and well-organised? | 10 yes |
| Did you find that the order of the modules was logical and that linkages were clear? | 9 yes; 1 said that order was ‘staggered’ |
| Did you find the discussion among other participants helpful? | 10 yes; 1 mentioned that sometimes she had questions and challenges specific to herself that she did not have time to get addressed |
| VIDEO VIGNETTES | |
| Did the fact that the video vignette scenarios were performed by scleroderma patients make the programme more relatable? | 9 yes; 1 had difficulty hearing the videos (participant with hearing impairment) |
| Were you able to clearly understand the people speaking in the videos? | 9 yes; 2 no; 1 indicated there were small things they did not quite hear (participant with hearing impairment) |
| Did you develop an understanding of the challenges that could arise in a support group from watching the videos and obtain useful information or strategies to address them? | 8 yes, 2 no (not hearing properly; 1 participant with hearing impairment) |
| TECHNOLOGY | |
| Did you use a computer, phone, tablet or all these devices to access the SPIN-SSLED Training Programme? | 7 used computer, 4 used phone, 1 used tablet (>10 due to >1 method for some participants) |
| Did the initial invitation email provide you with the information you needed to understand how to log in for the training session? | 10 yes |
| Did you experience any technical difficulties while using GoToMeeting? | 8 no; 2 minor |
| Did you experience any technical difficulties while using Slack chatroom? | 7 no; 3 did not use it. Use overall was minimal |
| Did you use the guide we provided to use GoToMeeting and the Slack chatroom? | 5 yes; 5 no |
| OVERALL APPRECIATION | |
| Can you please tell us about your experience with the SPIN-SSLED Training Programme, including things that you liked about the programme and things that could be improved? |
Positive aspects of
programme: informative, organised, videos, ‘Supporting Yourself as a Leader’ and ‘Grief and Crisis’ modules were identified as very important. Positive aspects of SPIN-SLLED programme leader: clear, conscientious, answered questions thoroughly, gave opportunities for feedback, was available between sessions. To improve: discuss financial support for support group expenses, expand grief module over two sessions, do sessions in winter instead of summer so that individuals with scleroderma can only enjoy the outdoors in summer, adding more videos. |
| What grade (on a 0–10 scale, 0 being the worst and 10 being the best possible score) would you give the programme? 0 (worst) to 10 (best). |
5 rated 10, 1 rated 9, 1 rated 9.5, 2 rated 8, 1 rated ‘9 or 10’. Mean score: 9.4/10 |
| Would you recommend this programme to someone with scleroderma? | 10 yes |
| Is there anything you want to give us feedback about that was not included in this interview? | The remote support group meetings module was less important to one participant. Suggestion to make recordings of support group discussions available online. |