Table 2.
Importance of Patient Representation and Factors Respondents Considered Regarding Patient Representation
Factors Considered Regarding Patient Representation | Importance of Patient Representation | |||
---|---|---|---|---|
How much it matters that JMAP has a patient on the board: | How much it matters that JMAP has a BAC in addition to a patient on the board: | |||
A lot | Not at all | A lot | Not at all | |
Patients deserve a voice | 69%*** | 5%*** | 58%*** | 4%*** |
Patient on board increases my trust | 76%*** | 4%*** | 65%*** | 3%*** |
I do not know enough about board decision-making | 22%*** | 15%*** | 24%*** | 13%*** |
My individual needs must be represented | 70%*** | 5%*** | 61%*** | 4%*** |
I need to learn about the representative. | 41%*** | 8% | 39%*** | 7% |
The representative is probably powerless | 31%*** | 15%** | 31%*** | 10% |
Other statement (see text for qualitative analysis) | 55% | 15%** | 52% | 12% |
All respondents | 53% | 10% | 47% | 9% |
Note. JMAP = Johns Hopkins Medicine Alliance for Patients; BAC = Beneficiary Advisory Council
p < 0.05, in comparison with all respondents
p < 0.001, in comparison with all respondents