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. Author manuscript; available in PMC: 2020 Sep 1.
Published in final edited form as: J Healthc Manag. 2019 Sep-Oct;64(5):332–346. doi: 10.1097/JHM-D-18-00152

Table 4.

Summary of Qualitative Findings Related to Factors Respondents Considered When Assessing Patient Representation

Coded Theme
Coding Frequency
Things patients want to know 33
 What are the representative’s qualifications?* 12
 I would like more information in general 7
 What does the board do?* 6
 Who is on the board?* 3
 How can I connect with the representatives? 2
 How was the representative selected?* 3
Keys to success 79
 There should be more than one patient representative 39
 Success depends on who the patient representative is 20
  Patient representatives should be representative of the population served 3
  Patient representatives should reflect diversity 2
 Transparency 5
  Ensure the patient representative connects with patients 3
 Ensure full participation of the representatives 2
 Rotate patient representatives after a fixed term 4
 Patients should choose their patient representative 1
A patient representative is important 66
 Offers general patient input 60
  Is critical to the success of the ACO 3
  Having some representation is better than none 1
  Helps represent my needs* 1
  Improves trust* 1
Expressing skepticism about patient representation, in concept or in practice 64
 Representatives may be unable to influence the board* 16
 One patient cannot represent all patients 13
 Being on a board is not something for a patient to do 8
  A patient representative may be overly self-focused 4
 As an individual, I do not need this 9
 It would be better to spend resources elsewhere 10
 The representative may be chosen for public relations purposes 4
Not coded 84
Total 326

Note. Rows with * relate to the six postulated factors reported in Table 1; rows without * therefore represent additional insights. ACO = accountable car organization.