Table 4.
Summary of Qualitative Findings Related to Factors Respondents Considered When Assessing Patient Representation
Coded Theme |
Coding Frequency |
---|---|
Things patients want to know | 33 |
What are the representative’s qualifications?* | 12 |
I would like more information in general | 7 |
What does the board do?* | 6 |
Who is on the board?* | 3 |
How can I connect with the representatives? | 2 |
How was the representative selected?* | 3 |
Keys to success | 79 |
There should be more than one patient representative | 39 |
Success depends on who the patient representative is | 20 |
Patient representatives should be representative of the population served | 3 |
Patient representatives should reflect diversity | 2 |
Transparency | 5 |
Ensure the patient representative connects with patients | 3 |
Ensure full participation of the representatives | 2 |
Rotate patient representatives after a fixed term | 4 |
Patients should choose their patient representative | 1 |
A patient representative is important | 66 |
Offers general patient input | 60 |
Is critical to the success of the ACO | 3 |
Having some representation is better than none | 1 |
Helps represent my needs* | 1 |
Improves trust* | 1 |
Expressing skepticism about patient representation, in concept or in practice | 64 |
Representatives may be unable to influence the board* | 16 |
One patient cannot represent all patients | 13 |
Being on a board is not something for a patient to do | 8 |
A patient representative may be overly self-focused | 4 |
As an individual, I do not need this | 9 |
It would be better to spend resources elsewhere | 10 |
The representative may be chosen for public relations purposes | 4 |
Not coded | 84 |
Total | 326 |
Note. Rows with * relate to the six postulated factors reported in Table 1; rows without * therefore represent additional insights. ACO = accountable car organization.