Table 3.
Dataset initiatives’ mechanisms related to access to research outputs
| Access domains | Initiative(s) | ||
|---|---|---|---|
| Participant access to data or analyses | GTL Studies | Open Humans | |
| Personal Genome Project | openSNP | ||
| Genomes in Need | Genomes Unzipped | ||
| Altruist Database | Genevieve | ||
| MTHFR Study | GET-Evidence | ||
| MyGene2 | Spit for Science (limited) | ||
| Participant access to findings and conclusions | Publications | GTL Studies | 23andMe |
| Personal Genome Project | Spit for Science | ||
| MTHFR Study | GET-Evidence | ||
| openSNP | GenomeConnect | ||
| Posters | Spit for Science | GenomeConnect | |
| Other | Spit for Science (presentations) | 23andMe (identification of articles reporting research that used personal data) | |
| Open Humans (policy encouraging open access publication) | |||