Table 1.

Aims and categories of dementia registries

Category of registry	Aims
Dementia research registry	• To support research into causes and risk factors for dementia. • To provide data on the natural history of dementia, determinants of progression, and their implications for clinical management. • To develop and measure effectiveness of interventions to reduce the risk and incidence of dementia, its treatment and management. • To evaluate and refine the diagnostic criteria for dementia, to standardize and validate screening instruments and diagnostic tests.
Subcategory: Preclinical dementia research registry	• To optimize conduct of clinical trials in preclinical stages of AD/dementia, to accelerate cohort development and trial recruitment.
Epidemiological dementia registry	• To collect epidemiological data on the prevalence, incidence, and risk of dementia.
Quality of dementia care registry	• To monitor the quality of dementia care. • To provide information on utilization and cost of health and aged care services and carer support, and to inform planning and development of dementia services.
Dementia research volunteer registry	• To identify people with dementia, their carers, and healthy volunteers who are willing to be involved in research studies and clinical trials.