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. Author manuscript; available in PMC: 2020 Jan 1.
Published in final edited form as: Ethics Behav. 2018 Apr 30;29(4):259–273. doi: 10.1080/10508422.2018.1463163

Table 4.

Parents’ Coded Responses as Most Positive and Most Difficult Aspects of Study.

Most positive aspect of participation (52 respondents)
 Response category (%)
 Contribution to research/science 59.6
 Other, e.g., being helpful, learning opportunities 28.8
 Child’s enjoyment/participation 11.5
 Researchers 7.7
 Participating with child 5.8
 Compensation 3.8
Most difficult aspect of participation (51 respondents)
 Response category (%)
 None/nothing 56.9
 Procedure/watching my child in pain/discomfort 21.6
 Logistics (e.g. timing, parking, scheduling) 9.8
 Other, e.g., the behavior of my child, getting my child to behave, initial study visit, and delay in scheduling final visit 9.8
 Answering questions/questionnaires 7.8

Totals exceed 100% as parents sometimes identified more than one theme.