Table 1.
Overview of participating cohorts in alphabetical order
| Country | Population | Study period | IS patients | ICH patients | Design | Patient selection | Stroke definition |
| Australia | Hospital-based multicenter | 2006–2010 | 306 | N.A. | Retrospective | Consecutive | WHO |
| Australia | Hospital-based multicenter | 2006–2018 | N.A. | 100* | Retrospective | Consecutive | Radiological |
| Austria | Hospital-based | 2008–2017 | 334 | 21 | Retrospective | Consecutive | Radiological |
| Belgium (BeFas and MiFas) |
Hospital-based multicenter | 2007–2008 | 447 | 49 | Prospective and retrospective | Consecutive | WHO |
| Brazil | Hospital-based | 2008–2012 | 135 | N.A. | Retrospective | Consecutive | WHO |
| Canada—Toronto Sunnybrook Health Sciences Centre |
Hospital-based multicenter | 118 | 16 | Prospective | Consecutive | WHO | |
| Canada—Toronto University Health Network |
Hospital-based | 2011–2018 | 350* | * | Prospective and retrospective | Consecutive | WHO |
| Costa-Rica | Hospital-based | 2012–2018 | 166 | 47 | Prospective and retrospective | Consecutive | WHO |
| Estonia | Hospital-based multicenter | 2003–2012 | * | * | Retrospective | Consecutive | WHO |
| Finland (HYSR) |
Hospital-based | 1994–2007 | 1004 | N.A. | Retrospective | Consecutive | WHO (modified) |
| Finland | Hospital-based | 2000–2010 | N.A. | 330* | Retrospective | Consecutive | Radiological |
| France | Hospital-based | 2006–2010 | 291 | N.A. | Prospective | Consecutive | Radiological |
| Germany | Hospital-based | 2007–2012 2017–2018 |
80 | N.A. | Prospective and retrospective | Consecutive | Radiological |
| India | Hospital-based | 1988–1997 | 206 | 23 | Prospective | Consecutive | WHO |
| Israel | Hospital-based multicenter | 2007–2017 | 326 | N.A. | Prospective and retrospective | Consecutive | WHO |
| Italy (IPSYS) |
Hospital-based multicenter | 2000–2013 | 2147 | N.A. | Prospective | Consecutive | Radiological |
| Japan (FSR) |
Hospital-based multicenter |
2009–2018 | * | * | Prospective and retrospective | Consecutive | WHO |
| Malaysia | Hospital-based | 177 | N.A. | Retrospective | Consecutive | Radiological | |
| Mexico—Mexico City | Hospital-based | 1990–2017 | 1383 | 566* | Prospective | Consecutive | Radiological |
| Mexico—Guadalajara | Hospital-based | 2017–ongoing | 15 | N.A. | Retrospective and prospective | Consecutive | Radiological |
| Mongolia | Hospital-based multicenter |
2012–2017 | * | * | Retrospective | Consecutive | WHO |
| Nigeria/Ghana (SIREN-study) |
Hospital-based multicenter |
245 | 270 | Case–control | Consecutive | Radiological | |
| The Netherlands (FUTURE-study) |
Hospital-based | 1980–2010 | 451 | 69 | Retrospective | Consecutive | WHO |
| New Zealand | Hospital-based | 2004–2009 | 128 | N.A. | Retrospective | Consecutive | WHO |
| Norway (NOR-SYS) |
Hospital-based | 2010–2015 | 149 | N.A. | Prospective | Consecutive | Radiological |
| Portugal | Hospital-based | 2009–2018 | 164 | N.A. | Prospective and retrospective | Consecutive | Radiological |
| Republic of Korea (SKY-study) |
Hospital-based multicenter | 2014–2016 | 166 | N.A. | Prospective | Consecutive | Radiological |
| South Africa | Hospital-based | 2003–2016 | 88 | N.A. | Retrospective | Consecutive | WHO |
| Sweden | Hospital-based | 1998–2007 | 502 | N.A. | Prospective | Consecutive | WHO |
| Switzerland—Bern (SYSS) |
Hospital-based multicenter | 2008–2012 | 399 | N.A. | Prospective | Consecutive | Radiological |
| Switzerland—Luzern | Hospital-based | 2016–2018 | 57* | Retrospective | Consecutive | Radiological | |
| Taiwan | Hospital-based | 1997–2001 | 590 | N.A. | Retrospective | Consecutive | Radiological |
| Turke | Hospital-based | 2017–ongoing | 102 | 6 | Retrospective | Consecutive | WHO |
| UK—Chertsey | Hospital-based | 2015–2018 | 100* | 20* | Retrospective | Consecutive | WHO/radiological |
| UK—Stockton on Tees | Hospital-based | 2013–2018 | 180* | 15* | Prospective and retrospective | Consecutive | WHO/radiological |
| USA—Baltimore–Washington region | Hospital-based multicenter | 1992–2008 | 889 | N.A. | Retrospective | Not consecutive | WHO |
| USA—Tampa | Hospital-based | 381 | 30 | Prospective and retrospective | Consecutive | WHO | |
| UnitedArab Emirates | Hospital-based | 2015–2018 | 174* | 79* | Retrospective | Consecutive | WHO |
Numbers of patients are the result of present received data. Definite numbers could differ from the numbers stated in this table as some cohorts/registers are still ongoing and will be providing additional data concerning newly included patients.
*Data not yet received.
BeFaS, Belgian Fabry Study; FSR, Fukuoka Stroke Registry; FUTURE, Follow-Up of Transient ischaemic attack and stroke patients and Unelucidated Risk factor Evaluation study; HYSR, Helsinki Young Stroke Registry; ICH, intracerebral haemorrhage; IPSYS, Italian Project on Stroke in Young Adults; IS, ischaemic stroke; MiFaS, Middelheim Fabry Study; N.A., not applicable; NOR-SYS, Norwegian Stroke in the Young Study; radiological, radiologically confirmed stroke; SIREN, Stroke Investigative Research and Educational Network; SKY-study, Stroke in Korean Young adults study; SYSS, Swiss Young Stroke Study.