Table 1.

Respondent demographics for 2013 and 2017-18 online questionnaires

Cause of steroid-dependence	2013 N = 1053	2017–18 N = 746
Autoimmune adrenal failure (Addison’s)	51.5%	71.4%
Pituitary condition	31.9%	5.4%
CAH (congenital adrenal hyperplasia	5.9%	0.1%
Surgical removal of adrenals	3.5%	5.7%
Secondary adrenal suppression	2.9%	7%
TB, HIV or other infectious cause	1%	0.7%
Adrenal haemorrhage	0.1%	0.5%
ALD (adrenoleukodystrophy)	0.1%	0.2%
Don’t know	3.1%	4.2%
All primary	62.1%	82.4%
All secondary	34.8%	12.4%
Age, years, estimated mean	50 years	54 years
Age range	(0–10) – (90+) years	(0–10) – (90+) years
Years since diagnosis, estimated mean	11.5 years	12.4 years
Years since diagnosis: range	(Less than 1) – (50+)	(Less than 1) – (50+)
Female, %	73%	78%
Educated to tertiary level, %	60%	56%