Table 2.
Themes mentioned by the largest proportion of users.
| High-level themes/subthemes | Description | Users discussing themes, n (%) | |
| Overall QDAa (N=73) | |||
| Humanistic burden | Impact on social life, impact on family, inability to do day-to-day activities, physical impact, and psychological impact | 63 (86) | |
| Treatment decisionb | Reasons for declining or not having treatment, reasons for pursuing one treatment over another, and stakeholders involved in the treatment decision | 41 (56) | |
| Unmet needs | Emotional support, management of symptoms and side effects, and treatment options | 37 (50) | |
| Life milestones | Spending time at home during the end-of-life period, putting affairs in order, and family and social events | 14 (19) | |
| Economic burden | Medical expenses, travel expenses, and inability to work | 9 (12) | |
| Treatment decision–targeted QDA (N=45) | |||
| Health-related quality of life | Severity of side effects, ability to leave hospital, ability to travel, and being able to socialize | 20 (44) | |
| Home and family | Being at home, reaching specific events, and spending time with family | 19 (42) | |
| Physician decision | What the physician thinks is the best treatment option for the patient | 5 (11) | |
| Patient and family wishes | What the patient and their family want to do regarding treatment | 4 (9) | |
| Affairs in order | Finances, childcare, and writing wills | 4 (9) | |
aQDA: qualitative data analysis.
bA total of 16 users included in the overall QDA had posts in the targeted treatment decision search; therefore, the total number of users mentioning the treatment decision theme in the study was 70. However, as no targeted search was conducted for the other themes, this number is not compared in the table above.