Table 1.
Demographics and disease characteristics at MGR sign‐up
| Characteristic | Statistic |
|---|---|
| Age at MGR (years) | |
| Mean ± SD | 54.6 ± 14.8 |
| Median (range) | 57.0 (18.0–93.0) |
| Gender female (%) | 66.2% |
| Race (%) | |
| White | 80.4 |
| Black | 6.2 |
| Hispanic | 0.2 |
| Disease duration (years) | |
| Mean ± SD | 9.9 ± 10.1 |
| Median (range) | 6.0 (2.0–58.0) |
| Age at first MG symptoms (years) | |
| Mean ± SD | 40.3 ± 18.9 |
| Median (range) | 40.0 (1.0–81.0) |
| AChR antibody status | |
| Told positive | 23.2% |
| Not told positive | 10.4% |
| Unsure or missing | 66.5% |
| MuSK antibody status | |
| Told positive | 5.8% |
| Not told positive | 8.0% |
| Unsure or missing | 86.2% |
| MG‐ADL total score (N = 1140) | |
| Mean ± SD | 6.2 ± 4.0 |
| Median (range) | 6 (0–21) |
| MG‐QOL total score (N = 1138) | |
| Mean ± SD | 22.2 ± 15.0 |
| Median (range) | 21 (0–60) |
Abbreviations: AChR, acetylcholine receptor; MG‐QOL15, Myasthenia Gravis 15‐item Quality of Life; MG‐ADL, Myasthenia Gravis—Activities of Daily Living; MGR, Myasthenia Gravis Patient Registry.