Table 2.

Ten most important research questions of ConnectEpeople survey respondents with children who have Down syndrome (N=35).

Question	Really important/important, n (%)	Not sure, n (%)	Definitely not important, n (%)
How can I maximize my child’s educational attainment?	34 (97)	1 (3)	0 (0)
What dietary supplements should my child be taking?	34 (97)	1 (3)	0 (0)
Does exercise enhance the immune system of children with Down syndrome?	33 (94)	1 (3)	1 (3)
Would early intervention, eg, tummy time, creeping, and crawling, enhance my child’s development?	33 (94)	1 (3)	1 (3)
How many children, with the same condition as my child, go to mainstream school?	32 (91)	1 (3)	2 (6)
Where would I find specialized information such as video clips of parents feeding a baby with my child’s condition?	32 (91)	0 (0)	3 (9)
Is obesity a problem with my child’s condition?	32 (91)	0 (0)	3 (9)
What is the latest genetic research relating to my child’s condition?	32 (91)	3 (9)	0 (0)
What is the psychosocial impact of my child’s condition on my child and our family?	32 (91)	1 (3)	2 (6)
What complementary therapies are beneficial for my child?	32 (91)	2 (6)	1 (3)