Table 4.

Ten most important research questions of ConnectEpeople survey respondents with children who have cleft lip with or without cleft palate (N=16).

Question	Really important/important, n (%)	Not sure, n (%)	Definitely not important, n (%)
What is the rate of reoccurrence of cleft lip with or without cleft palate among siblings?	16 (100)	0 (0)	0 (0)
Are there lactation consultants with expertise in supporting parents who have a child like mine?	16 (100)	0 (0)	0 (0)
What are the genetic and environmental causes of cleft lip with or without cleft palate?	16 (100)	0 (0)	0 (0)
Where would I find specialized information such as video clips of parents feeding a baby with my child’s condition?	16 (100)	0 (0)	0 (0)
What is the best age for children with a cleft to have surgery?	16 (100)	0 (0)	0 (0)
What is the latest genetic research relating to my child’s condition?	15 (94)	1 (6)	0 (0)
How can I maximize my child’s educational attainment?	14 (88)	2 (12)	0 (0)
What complementary therapies are beneficial for my child?	14 (88)	2 (12)	0 (0)
What is the psychosocial impact of my child’s condition on my child and our family?	14 (88)	0 (0)	2 (12)
What is the normal milestone development for a child with the same condition as my child?	13 (81)	2 (13)	1 (6)