Table 5.

Ten most important research questions of ConnectEpeople survey respondents with children who have congenital heart defects (N=10).

Question	Really important/important, n (%)	Not sure, n (%)	Definitely not important, n (%)
If my child is diagnosed with a heart condition in the womb, are there any medications I can take to help my baby?	10 (100)	0 (0)	0 (0)
Is it okay for my child to get vaccinated?	10 (100)	0 (0)	0 (0)
Is there an increased number of hospital admissions during winter with children with heart defects?	10 (100)	0 (0)	0 (0)
Is obesity a problem with my child’s condition?	10 (100)	0 (0)	0 (0)
What is the latest genetic research relating to my child’s condition?	10 (100)	0 (0)	0 (0)
How can I maximize my child’s educational attainment?	10 (100)	0 (0)	0 (0)
What is the psychosocial impact of my child’s condition on my child and our family?	10 (100)	0 (0)	0 (0)
Can you pick up heart defects during pregnancy and reduce the damage?	9 (90)	1 (10)	0 (0)
How many children have heart surgery and how many survive?	9 (90)	1 (10)	0 (0)
What age is my child likely to live to?	9 (90)	1 (10)	0 (0)