TABLE 3.
Functiona | % Yes (n) | References |
---|---|---|
Fostering healing relationships (k = 0.74) | 33.3 (30) | 12–25,27,30,31,43,74–77,81,83,84,87,88,92,109,111 |
Exchanging information (k = 0.84) | 95.6 (86) | 12–24,26,27,29–52,54–59,61–65,67–77,79,80,82,83,86,88–90,92,93,104,107–111 |
Responding to emotions (k = 0.69) | 25.6 (23) | 12,13,15,16,22–25,31,36,43,57,63,64,75,76,81–87,111 |
Managing uncertainty (k= 0.92) | 4.4 (4) | 20,26,63,75 |
Making decisions (k = 0.85) | 35.6 (32) | 12–14,17–19,24,30,33,35–37,42,45,46,53–55,64–66,68,69,72,77,78,86,89–92,106 |
Enabling patient and family | ||
Self-management (k = 0.92) | 6.7 (6) | 22,25,63,79,82,93 |
Content | ||
Child report (k = 0.87) | 15.6 (14) | 14,16,17,21,37,38,40,53,54,69,70,79,83,110 |
Parent report (k = 0.90) | 67.8 (61) | 12–21,23–28,34,35,40,42–47,49–54,61,62,65–68,70–75,77–81,85–93,105,107,109 |
Physician report (k = 0.90) | 32.2 (29) | 18,19,21,25,26,29,31,32,48,52,53,55–58,64,65,68,72,74,78–80,82,86,90,91,104,107 |
Nurse report (k = 0.96) | 15.6 (14) | 21,22,24,29,31,48,52,53,57,79,82,84,86,108 |
Report of other staff (k = 0.96) | 5.6 (5) | 48,52,57,79,82 |
Communication of prognostic disclosure (k = 0.80) | 32.2 (29) | 14,16,18,19,22,26–31,35,44,45,52,57,61,62,71,72,77,80,82,86,88,90,105,107,109 |
Communication of diagnosis, treatment, toxicity (k = 0.74) | 46.7 (42) | 13,14,16,19,20,22,23,26,28,30–33,35,40,43–47,50–52,60,61,63,66–74,76,79,82,92,105,106,110 |
Fertility preservation (k = 1.00) | 8.9 (8) | 37,38,40,56,58,65,82,108 |
End of Life discussion (k = 0.94) | 16.7 (15) | 12,17,19,25,29,41,42,53,57,62,86,90,91,93,104 |
Research informed consent (k = 0.98) | 17.8 (16) | 13,19,33–36,54,55,59,60,64,68,72,81,89,106 |
Survivorship/late effects (k = 1.00) | 4.4 (4) | 39,40,49,50 |
For both outcome and content, the total percentage exceeds 100% because studies frequently engaged more than one outcome or content source.