Table 1.

Summary results from consumer surveys

	Total	PH	LSA
Total survey respondents, N = 174
All	174	74	100
Gender (female)	158	74	84
Age (years)
Under 40	61	38	23
40–60	95	32	63
Over 60	18	4	14
Genetic risk variant
MLH1	25	–	25
MSH2	27	–	27
MSH6	16	–	16
PMS2	12	–	12
Other/unsure	22	2	20
BRCA1	41	41	–
BRCA2	31	31	–
Willing to discuss experiences by phone	71	45	26
Difficulty accessing life insurance product	29	7	22
Took part in follow-up interview	4	2	2
Reported difficulty accessing insurance, N = 64
All	64	18	46
Type (multiple possible per respondent)
Life insurance products Total	49	12	37
Life insurance	39	9	30
Income protection insurance	31	6	25
Disability insurance	20	5	15
Mortgage insurance	11	1	10
Travel insurance	8	8	–
Personal history of cancer	32	10	22
No personal history of cancer, in high-risk surveillance and/or had preventive surgerya	32	8	24
Appealed insurer’s decision	6	2	4
Did not report appealing insurer’s decision	58	16	42
Did not know appeal was an option	–	–	21
Other/did not answer question	–		21
Did not report difficulty accessing insurance, N = 110
All	110	56	54
Obtained life insurance at standard rates after genetic testing	10	3	7
Obtained travel insurance at standard rates after genetic testing	13	13	–
Already had insurance prior to testing	61	30	31
Did not attempt to obtain insurance/did not answer the question	39	24	15

Dashed fields (–) indicate questions not asked or not relevant

^aPossible breaches of the industry code and Disability Discrimination Act 1992 (Cth)