Table 2.
Conceptual framework of curatorial issues and choices.
| Curatorial issues and specific choicesa | UIDb | ||
| Purpose | |||
|
|
Narrator benefits | ||
|
|
|
To support narrators’ recovery | 13 |
|
|
|
To empower narrators | 13,17 |
|
|
Recipient benefits | ||
|
|
|
To help recipients understand mental health problems | 15 |
|
|
|
To help recipients talk about mental health problems | 15 |
|
|
|
To help recipients understand when to seek help | 12 |
|
|
Societal influence | ||
|
|
|
To reduce stigma about mental health | 12 |
|
|
|
To provide access to unheard voices | 1 |
| Audience | |||
|
|
Identification | ||
|
|
Target people with an interest in mental health | 20 | |
|
|
Interaction | ||
|
|
Allow commenting on narratives | 6 | |
| Safety | |||
|
|
Narrator safety | ||
|
|
|
Anonymize narrators to protect identity | 1 |
|
|
|
Clearly identify narrators to given them a voice | 1 |
|
|
|
Provide guidance on choices around revealing narrator identity | 8,3 |
|
|
|
Develop a supportive relationship with a narrator | 2 |
|
|
|
Provide guidance on the emotional impact of creating narratives | 13 |
|
|
|
Provide guidance on how sharing might impact relationships | 3 |
|
|
|
Signpost narrators to resources that can help if distressed | 8 |
|
|
|
Continue to support a narrator after a narrative is public | 3 |
|
|
Recipient safety | ||
|
|
Provide guidance to narrators on how to create narratives that exclude features known to trigger harmful behaviors | 6 | |
|
|
|
Moderate comments in narratives shared on the Web | 6 |
|
|
Third-party safety | ||
|
|
Provide guidance on protection of others identifiable in narratives | 3 | |
| Collection of narratives | |||
|
|
Recruiting narrators | ||
|
|
|
Targeted requests (through health services, support groups, targeted advertising) | 2,22 |
|
|
|
Online calls for submission (on organizational websites) | 7,8 |
|
|
Creation of narratives | ||
|
|
|
Interviews with narrators | 2 |
|
|
|
Direct submission by narrators | 7,8,12 |
| Selection of narratives | |||
|
|
Narrative selection | ||
|
|
Review submitted material | 8 | |
|
|
Narrative diversity | ||
|
|
Seek a diverse range of narratives | 3 | |
| Editing of narratives | |||
|
|
Editing for clarity | ||
|
|
Shorten, enhance flow, and remove repetition | 18 | |
|
|
Editing for safety | ||
|
|
Destroy identifying information | 21 | |
| Presentation of narratives | |||
|
|
Ordering | ||
|
|
|
Order narratives by clinical diagnosis | 3 |
|
|
|
Order narratives to highlight mutual connections | 18 |
|
|
Format | ||
|
|
|
Allow a diversity of formats | 3 |
|
|
|
Present narratives that conform to a specific format | 11 |
|
|
Authenticity | ||
|
|
|
Established through references to formal health records | 1 |
|
|
|
Established through reference to societal status of narrator | 1 |
|
|
|
Established through reference to narrator activism | 1 |
| Ethics and legality | |||
|
|
Consent | ||
|
|
Establish clear consent for use (written or verbal) | 3 | |
|
|
Ownership | ||
|
|
Establish through formal written agreements | 7 | |
|
|
Societal positioning | ||
|
|
|
Position relative to public policy | 17 |
|
|
|
Position relative to clinical language | 3 |
aItalicized text indicates a choice identified from a peer-reviewed article.
bUID: unique identifier.