Table 1.
Participant characteristics of study population and for subgroups at 13‐year follow‐up
| PERRIN 0–5y | PERRIN 5–9y | PERRIN 9–16y | PERRIN 16–24y | |||
|---|---|---|---|---|---|---|
| Baseline | Baseline | Baseline | 13y follow‐up | Baseline | 13y follow‐up | |
| Participants (n) | 97 | 116 | 107 | 67 | 101 | 54 |
| Observations (n) | 314 | 328 | 399 | 67 | 260 | 54 |
| Age (y:mo) at baseline or 13y follow‐up, mean (SD) | 1:7 (0:2) | 6:3 (1:0) | 11:2 (1:8) | 24:7 (1:7) | 18:6 (1:6) | 31:8 (1:5) |
| Sex, n (%) | ||||||
| Males | 56 (58) | 76 (65) | 67 (63) | 45 (67) | 60 (59) | 29 (54) |
| Females | 41 (42) | 40 (35) | 40 (37) | 22 (33) | 41 (41) | 25 (46) |
| Intellectual disability, n (%) | ||||||
| No | 50 (52)a | 79 (68)a | 75 (70) | 46 (69) | 101 (100) | 54 (100) |
| Yes | 45 (46) | 35 (30) | 32 (30) | 21 (31) | 0 (0) | 0 (0) |
| Level of gross motor function, n (%) | ||||||
| GMFCS level I | 30 (31) | 56 (48) | 49 (46) | 30 (45) | 74 (73) | 38 (70) |
| GMFCS level II | 13 (13) | 20 (17) | 14 (13) | 7 (10) | 8 (8) | 4 (7) |
| GMFCS level III | 23 (24) | 17 (15) | 13 (12) | 8 (12) | 6 (6) | 4 (7) |
| GMFCS level IV | 21 (22) | 9 (8) | 13 (12) | 9 (13) | 12 (12) | 7 (13) |
| GMFCS level V | 10 (10) | 14 (12) | 18 (17) | 13 (19) | 1 (1) | 1 (2) |
| Type of CP, n (%) | ||||||
| Unilateral spastic CP | 41 (42) | 42 (36) | 37 (35) | 21 (31) | 41 (41) | 21 (39) |
| Bilateral spastic CP | 53 (55) | 56 (48) | 49 (46) | 31 (46) | 47 (47) | 25 (46) |
| Non‐spastic CP | 3 (3) | 18 (16) | 22 (20) | 15 (23) | 13 (12) | 8 (15) |
| Communication function, n (%)b | ||||||
| CFCS level I | – | – | – | 37 (55) | – | 46 (85) |
| CFCS level II | – | – | – | 17 (25) | – | 7 (13) |
| CFCS level III | – | – | – | 9 (13) | – | 1 (2) |
| CFCS level IV | – | – | – | 2 (3) | – | 0 (0) |
| CFCS level V | – | – | – | 2 (3) | – | 0 (0) |
aUnknown in n=2. bCommunication Function Classification System (CFCS) was only available at the 13‐year follow‐up. PERRIN, Pediatric Rehabilitation Research in the Netherlands; GMFCS, Gross Motor Function Classification System; CP, cerebral palsy.