Table 2. Client identified recommendations to enhance the health care experience.
Recommendation | |
---|---|
Knowledge gaps | • Review and use resources and educational material to enhance knowledge sharing • Review and enhance the effectiveness of communication pathways • Support two-way knowledge sharing events between clients and health services teams which enable improved delivery of information about CKD, causes, prevention and treatment options • Enable and ensure family members are included in education sessions • Identify and utilise language interpreters for health care interactions and health care resources and materials |
Health Care Provider Quality |
• Workforce strategy: increased capacity of the Aboriginal Health Workforce, staff capability and professionalism; Involve expert-clients within the formal employment network. • Provide a holistic approach to CKD care/management–inclusive of social and emotional wellbeing. • Enhance opportunities for continuity of care: service response might include Navigators (which could have a regional responsibility). • Health service environment recognising and valuing Indigenous culture in the workplace. • Support Consumer feedback framework, by continuation of the renal client reference group. • Embed dissemination methods to share key policy with clients that have been developed within the reference group. |
Impacts of relocation and service environment | • Communities need to be informed about the process for transitioning for ESKD care at the time of and following incident dialysis †. • Clients need to be supported to return to communities for ceremonies and other important occasions. • Advocate and enable timely access to appropriate accommodation for clients and families |
Service Environment | • Enhance environment to be more family friendly. • Transport schedules to be more efficient. • Increase awareness of upholding client confidentiality. • Investigate role of carers further and provide supports for them. • Clients supporting one another through creation of group consultation sessions to assist holistic support and peer support. |
†An inaugural federally funded medicare benefits schedule (MBS) item number to support assisted-haemodialysis in very remote regions of Australia was implemented in November 2018, during the data interpretation and synthesis stage of the study [13].