Table 2.
Measurements included in the ALSAA surveys
| Measure/domain | Self-report | Informant report | Carer |
| Demographics and personal characteristics | |||
| Basic demographics (age, sex, ethnicity, English speaking status) |
✓ | ✓ | ✓ |
| Other demographics (education, occupation*, family and living conditions, income) |
✓ | ✓ | ✓ |
| Autism characteristics | |||
| The Autism Quotient-Short† (AQ-Short)67 | ✓ | ✓ | ✓ |
| Repetitive Behaviours Questionnaire-2 adult version63 | ✓ | ✓ | |
| The Glasgow Sensory Questionnaire95 | ✓ | ✓ | |
| The Intolerance of Uncertainty Scale-1296 | ✓ | ✓ | |
| Health and well-Being | |||
| Medical history | ✓ | ✓ | ✓ |
| Medication profile | ✓ | ✓ | |
| Smoking, alcohol and illicit drug use* | ✓ | ✓ | |
| The Patient Health Questionnaire-15 (PHQ-15)97 | ✓ | ✓ | |
| Medical outcomes study Short Form Health Survey-1298 | ✓ | ✓ | ✓ |
| The Composite Autonomic Symptom Score-3199 | ✓ | ||
| Pittsburgh Sleep Quality Index100 | ✓ | ||
| Flinders Fatigue Scale101 | ✓ | ||
| Mental and emotional health | |||
| DSM-5 Dimensional Anxiety Scales: Generalised Anxiety Disorder-Adult (DSM-5)102 | ✓ | ✓ | |
| The PHQ-961 | ✓ | ✓ | |
| The Warwick Edinburgh Mental Well-being Scale103 | ✓ | ||
| The New General Self-efficacy Scale104 | ✓ | ||
| The Emotion Regulation Questionnaire105 | ✓ | ✓ | |
| Developmental Behaviour Checklist-Adolescent/Adult version Revised106 | ✓ | ||
| The Brief COPE107 | ✓ | ✓ | |
| Memory Complaint Questionnaire108 | ✓ | ||
| Relationships and social networks | |||
| UCLA Loneliness Scale-8109 | ✓ | ||
| Supports and networks* | ✓ | ✓ | |
| The Social Support Questionnaire110 | ✓ | ✓ | |
| Activities, participation and quality of life | |||
| World Health Organisation Quality of Life (WHOQOL) -BREF111 | ✓ | ✓ | |
| Waisman Activities of Daily Living Scale112 | ✓ | ✓ | |
| WHO Disability Assessment Schedule113 | ✓ | ✓ | ✓ |
| Vocational index for adults with autism114 | ✓ | ✓ | |
| Special abilities and interests‡ | ✓ | ||
| Leisure activities participation | ✓ | ✓ | |
| Leisure Satisfaction Scale115 | ✓ | ||
| Driving and transport | ✓ | ✓ | ✓ |
| Service usage | |||
| Client Service Receipt Inventory116 | ✓ | ✓ | |
| Health service seeking behaviour | ✓ | ✓ | |
| Early intervention service history | ✓ | ✓ | |
| Justice system contact | ✓ | ✓ | |
| Preventative health screening | ✓ | ✓ | |
| Caring | |||
| Positive Affect Index117 | ✓ | ||
| Caregiver Activity Survey-Intellectual Disability118 | ✓ | ||
| Zarit Burden Interview119 | ✓ |
*Based on questions from the National Health Survey of Mental Health and Well-being (Slade, Johnston, Oakley Browne, Andrews and Whiteford, 2009).
†A 28-item parent-carer report adaptation using items from the AQ-Adolescent (Baron-Cohen, Hoekstra, Knickmeyer and Wheelwright, 2006) was used for the Informant-Report Survey.
‡Based on questions from the Interactive Autism Network (https://iancommunity.org/).
ALSAA, Australian Longitudinal Study of Adults with Autism.