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. 2019 Dec 15;9(12):e034485. doi: 10.1136/bmjopen-2019-034485

Table 2.

Description of the type of preferences investigated in the included studies

Types of preferences Definition Themes No. of studies References
End-of-life care preferences Treatment preferences for resuscitation and critical care. Covers all aspects relating to anticipatory decision-making such as advance directives. Advanced care planning 51 28 32–34 36 39 46 50–52 56 58–81 150 161 169–182
 - Life-sustaining treatment preferences 29 28 32–34 36 58–81
Self-management preferences Preferences related to the ongoing activities that an individual undertakes to maintain or reduce the effect of a disease/s on his or her health status.
It includes how and under what circumstances, patients prioritise conditions and adjust self-management practices, how priorities might change over time, and how these are discussed with healthcare professionals.
eHealth support 2 30 104
Prioritisation of health problems 20 30 45 47 54 83–98
Medication self-management 8 42 43 47 54 99–102
Self-care behaviours 3 44 55 103
Revisiting choices 2 29 30
Treatment preferences Preferences that involve a discrete set of effective treatment options (eg, radical mastectomy vs lumpectomy with radiation for localised breast cancer). The treatment options can include any intervention with a therapeutic aim. Medication 13 37 41–43 47 49 53 54 105–108
Dialysis 6 48 109–113
Surgery 4 114–117
Chemotherapy 5 35 57 118–120
Non-pharmacological/conservative 3 121–123
Medication device 1 183
Involvement in the shared decision making process preferences Preferences regarding the degree of involvement in discussions with health professionals about the options for treatment, the benefits and harms of each therapy, and making collaborative decisions about how to proceed. Patterns of engagement 21 37 41 46 48–52 57 124–133
Patient decision aid 1 56
Information 4 39 52 128 134
Communication with providers 1 40
Healthcare service preferences Preferences related to the quality of care and the planning and delivery of the services the health system provides. Processes of care 10 45 135–143
 - Site of care 2 138 142
 - Type of social support 1 139
 - Type of caregiver/provider 3 135 138 143
 - Continuity and access 5 45 135–137
 - Guiding principles 1 141
Service models 2 31 144
 - Chronic care model 1 31
 - Cardiac rehabilitation 1 144
Health outcome prioritisation and goal setting Preferences regarding personal health and life outcomes (eg, function, social activities and symptom relief) that people hope to achieve through their healthcare. Health outcome goals that patients prioritise within the context of their care preferences. Life and health goals 6 44 55 145–148
Health outcome prioritisation 10 53 149–155
1
 - Preferred tools 1 151
Collaborative goal setting 3 103 158 159
 - Patient, physician, caregiver agreement 1 158
Screening and diagnostic tests preferences Preferences that involve the decision whether or not to undergo a screening or diagnostic test. Screening test 1 160
 - Cancer screening 1 160