Table 1.

Psychological and Cognitive Measures

Outcome	Measure	Scoring	Statement Example
Depression	PROMIS - Ca Item Bank v1.0 - Emotional Distress - Depression questionnaire: 30 items assessing presence and severity of depression	Patient rated on 5 point scale from “never” (1) to “always” (5)	“In the past 7 days… I felt helpless”
Anxiety	PROMIS - Ca Item Bank v1.0 - Emotional Distress - Anxiety questionnaire: 22 items re: symptoms of anxiety	Patient rated 5 point scale from “never” (1) to “always” (5)	“In the past 7 days… my worries overwhelmed me”
Post-Traumatic Stress Disorder (PTSD) symptoms	Impact of Life Events Scale: 22 items divided into 3 subscales that include avoidance, intrusion, and hyper-arousal. Evaluates symptom presence, severity, and degree of impairment	Patient rated 5 point scale from “not at all” (0) to “extremely” (4)	“How distressing has each difficulty been for you during the past 7 days with respect to cancer… I had trouble staying asleep”
Social Isolation	PROMIS Item Bank v2.0 - Social Isolation 14 item Short Form: evaluates feelings about perceived social isolation	Patient rated on a 5 point scale from “never” (1) to “always” (5)	“I feel isolated from others”
Pain Behaviour	PROMIS: Item Bank v.2.0 – Pain Behavior scale: 20 items evaluating behaviours related to pain	Patient rated from “Had no pain” (x), Never (1) to “Almost Always” (5)	“In the past 7 days, when I was in pain… I took medication for the pain”
Fatigue	PROMIS: Item Bank v1.0 - Fatigue - Short Form 8a scale: 8 items re: fatigue frequency and intensity	Patient rated on a 5 point scale from 1 (Not at all or Never) to 5 (Very much or Always)	“In the past 7 days… how run-down did you feel on average?”
Cognitive Function	PROMIS: Item Bank v2.0 – Cognitive Function: 32 items re: cognitive function including frequency and severity of cognitive concerns	Patient rated on a 5 point scale from “very often (several times a day)” (1) to “never” (5)	“In the past 7 days… I have had trouble concentrating”