Table 4:

Alzheimer’s genetics Quality of Informed Consent (QUIC) Willingness items survey responses

Question	Strongly Agree	Agree	Not sure	Disagree	Strongly Disagree	Missing	Item Score
	N (%)	N (%)	N (%)	N (%)	N (%)	N (%)	Mean (SD)
It is important to participate in genetic research.	269 (53.6)	194 (38.6)	27 (5.4)	5 (1.0)	2 (0.4)	5 (1.0)	95.88 (16.13)
I would like to be presented with an opportunity to participate in an experimental medication trial if I were at high risk for developing Alzheimer’s disease.	156 (31.1)	230 (45.8)	78 (15.5)	15 (3.0)	5 (1.0)	18 (3.6)	87.81 (25.86)
I would prefer not to be contacted for future research based on my genetic information.	7 (1.4)	28 (5.6)	61 (12.2)	248 (49.4)	138 (27.5)	20 (4.0)	86.41 (29.32)
Researchers should not knowingly withhold information about promising studies for which I may be eligible.	119 (23.7)	278 (55.4)	54 (10.8)	18 (3.6)	11 (2.2)	22 (4.4)	88.33 (27.40)
I would be willing to submit my genetic information to a registry to help match me to Alzheimer’s disease research studies based on my genetic information.	132 (26.3)	279 (55.6)	55 (11.0)	12 (2.4)	3 (0.6)	21 (4.2)	91.16 (22.82)

Note: Bolded responses reflect positive attitudes towards/a willingness to participate in AD genetic research.