Table 2.

An overview of the categories and subcategories

Categories	Subcategories
Want to be involved without being in charge	Having access to healthcare Assigning responsibility to healthcare providers Being reinforced by regular follow-ups Expects that care is coherent
A desire to be in control without acting as the driving force in the care situation	Staying up-to date Acting as the patient’s advocate
A need for sustainability without being overlooked	Well-functioning contacts over time Being in good hands
Focusing on making life meaningful while being preoccupied with caregiving activities	Balancing existential concerns and caregiving activities Staying engaged in life, despite caregiving activities