Table 3.
Results of the acceptability survey.
| Criterion | Median (% ranking as good or excellent) | |
| Comprehensibility of different information sections (1=Poor, 2=Fair, 3=Good, 4=Excellent) |
|
|
|
|
Impact of sickle cell | 3 (84) |
|
|
Risk factors | 3 (72) |
|
|
Research | 3 (57) |
|
|
Treatment options | 3 (69) |
|
|
Evidence supporting self-care | 3 (68) |
|
|
HUa/BMTb/CTTc | 3 (68) |
|
|
Evidence about HU/BMT/CTT | 3 (64) |
|
|
Stories about others | 3 (58) |
| Amount of time learning took: (1=too much, 2=too little, 3=just right) | 3 (72) |
|
| The amount of information was: (1=Poor, 2=Fair, 3=Good, 4=Excellent) | 3 (72) |
|
| Found the information: (1=slanted towards self-care, 2=slanted towards interventions, 3=balanced) | 3 (62) |
|
| Information was useful when making decision regarding HU/BMT/CTT (1=Yes, 2=No) | 1 (87) | |
| Ways to calculate risk factors (1=Easy, 2=Difficult) | 1 (68) | |
| Health history worksheet made the decision: (1=Easy, 2=difficult) | 1 (81) | |
| Portfolio worksheet made your discussion with the physician more: (1=Easy, 2=Difficult) | 1 (81) | |
| Did it provide information to help someone decide on whether to accept HU/BMT/CTT (1=Yes, 2=No) | 1 (76) | |
aHU: hydroxyurea.
bBMT: bone marrow transplantation.
cCTT: chronic transfusion therapy.