Table 4.
Values considered important by patients and caregivers regarding treatments.
| Value | Mediana (25th, 75th percentile) |
| How important is it for you to know the complications of SCDb? | 11 (11, 11) |
| How important is the benefit of reducing SCD-related complications? | 11 (10, 11) |
| How important is the possibility of living longer due to a treatment? | 11 (10, 11) |
| How important is risk of hair loss from hydroxyurea? | 11 (7, 11) |
| How important is risk of darkening of nails due to hydroxyurea? | 11 (7, 11) |
| How important is risk of cancer due to hydroxyurea? | 11 (9, 11) |
| How important is the need for recurrent blood draws on treatment? | 11 (8, 11) |
| How important is possibility of reducing stroke risk due to transfusion? | 11 (10, 11) |
| How important is risk of transfusion reaction? | 11 (10, 11) |
| How important is risk of infection due to transfusions? | 11 (10, 11) |
| How important is risk of iron overload due to transfusion? | 11 (10, 11) |
| How important is possibility of cure by BMTc? | 11 (10, 11) |
| How important is risk of graft failure from BMT? | 11 (10, 11) |
| How important is risk of graft versus host disease from BMT? | 11 (10, 11) |
| How important is risk of infertility following BMT? | 11 (5, 11) |
| How important is risk of death following BMT? | 11 (11, 11) |
aEvaluated on an 11-point Likert scale.
bSCD: sickle cell disease.
cBMT: bone marrow transplantation.