Table 4.
Theme/code | Expanded code | Evidence/comments on: | |
---|---|---|---|
Process | Includes evalution process, referral process, services process; case management code | •The process of screening, getting a refferel, and other copies related to diagnosis and evaluation. | •ASD case management •Process to securing service in the past or currenly. |
•Process of obtaining services at school or community. | •Description of communicatio bettween providers/parents regarding services. | ||
Helpers | Service helpers, evalution helpers, support network advocacy | •Person considered helpful. | •Funding mechanisms •Accomodation |
•Positive example of provider or parental accomplishments of getting services or evalution. | •Social network/cultural brokers | ||
Recommendations | Intervation ideas from parents and providers about sevices desired and technology | •Services programs that the parent or provider thinks would benefit. | •Ways to use technology with the family |
Cultural differences | Cutural and Iinguistic diversity | •Different in culture, or aspects of culture. Includes race, SES, religion, generation, rural, and language barries from the provider or parent. | |
Barriers | Includes all service barries, evaluation delay/problem, misdiagnoso, parent/provider conflict, financial. | •Anything that prevents or delays the evaluation, dianosis or services •Intial misdiagnosis,mislabel,or misdiagnosis at any stage/environment. •Issues that cause tension in the relationship betwen parents and proders. |
•Famil accomodation such as needing to quit job to care for cild •Issues concerning transportation, finances, linited availability of service providers,denial/delay of services, waitlist, and other factors that limit service consumption;includes change/loss of services. |
Knowledge | Includes education needed,parent/provider knowledge | •Knowledge or information parents or providers need,or that they do not process •The knowledge a parent or provider processes; seeking knowledge or info gathering. |
•Confusing aspects of the process. •The use of technology by the family to gain knowledge |
Parentalconcerns/feelings | Includes mention of parental concern or feeling about child and process. | •Issues oe behaviors parents worry about in the community, at home or school •Parents ‘feeling about getting te ASD dignosis,disability in general; stigma of disability; emotion, denial/acceptance. |
•Instances were parent places a value (feeling or emotion) on a service, person, agency, or experience. •Service the parent wish they had specifically foe themselves. |
Beginning stages | Mention of early signs and age of diagnosis. | Child behavior that indicate a potential issue or concern, people who first notice the problem and age of diagnosis. | • Any early sign, red flag, or parental concermn before te child gets the diagnosis |