Table 1.

Development process of the framework

#	Description
1	Identification of existing tools such as checklists, methods, handbooks and standards for the selection of PROs and PROMs
2	Identification of user requirements and designing a step-by-step approach for the selection and use of PROs and PROMs, providing a framework for end-users
3	Presenting and discussing a prototype of the framework during a national workshop
4	Designing and developing a web version for the framework with guidance and tools included
5	Testing and finalizing the framework in a project in which PROs and PROMs were selected for patients with osteogenesis imperfecta; and through interviews with potential end-users