Table 1.
Characteristics of Included Studies
| Study | Country | No. Indigenous participants (n) |
Participant group(s) | Age range (years) |
Methodological framework |
Data collection | Analysis e.g. content, framework, thematic, GT |
Topic |
|---|---|---|---|---|---|---|---|---|
| Anderson et al. 2008* [11] | AU |
146 Aboriginal & Torres Strait Islanders |
ESKD pts | (18–65) | Interview study -life story narrative | In depth narrative style face to face interviews | Thematic content analysis | Understanding of their chronic kidney disease and attitudes to treatment |
| Bennett et al. 1995 [12] | AU |
11 Aboriginal & Torres Strait Islanders |
Transplant recipients | NS | Exploratory qualitative | In-depth interviews | NS | Social and cultural factors in dialysis and transplantation |
|
Davison & Jhangri 2014 [13] |
CA |
21 First Nations |
General population | 18+ (Age criteria) | Multiple case study | Semi-structured face to face interviews | Critical realism | Attitudes toward organ transplant and donation |
|
Devitt et al.* 2017 [14] |
AU |
146 Aboriginal & Torres Strait Islanders |
ESKD pts | 18–65 | Interview study -life story narrative | Narrative style face to face interviews. | Thematic | Views of transplant and organ donation |
|
Fahrenwald & Stabnow 2005 [15] |
US |
21 Oglala Lakota Sioux |
General population | 21–82 |
Ethnographic Social-ecological |
In-depth Interviews |
Thematic | Sociocultural patterns influencing decisions about organ and tissue donation |
|
Jones & Cornwall** 2018 [16] |
NZ |
9 Māori |
ESRD pts | Mean 49.8 (Total Qualitative Sample) | Qualitative descriptive | Face to face semi-structured interviews | Thematic | Factor influencing decision-making among ESRD pts. considering approaching family or friends for a kidney |
|
Jones** 2017 [17] |
NZ |
9 Māori |
ESRD pts |
23–68 Mean 49.8 (Total Qualitative Sample) |
Qualitative descriptive | Face to face semi-structured interviews | Inductive thematic | Factor influencing decision-making among ESRD pts. considering approaching family or friends for a kidney |
|
Keddis 2019 [18] |
US | 12 Native American | ESKD presenting for kidney transplant evaluation | Mean 50.1 (+/−8.65) | Exploratory qualitative | Semi structured interviews | Grounded theory & inductive thematic analysis | Perceptions & attitudes about kidney transplant |
|
Martin 2013 [19] |
NZ |
4 Māori |
ESRF waitlisted for kidney transplant |
19–77 (Total Qualitative Sample) |
Pragmatic mixed methods -including qualitative interviews | Semi structured face to face interviews | A priori and inductive thematic analysis | Barriers to live donor kidney transplant |
|
Smith 2015 [20] |
CA |
1 First Nations |
Donor | NS | Autoethnography | Journal records |
NS Narrative |
Lived experience of kidney donation |